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Engage Explore Connect: Airway Clearance Word Search
Airway Clearance
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Hello! What type of airway clearance device are currently using?
I have used the acapella, the flute, the aerobics and the vest in the past. There are pros and cons of each device. Below is information on airway clearance devices. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or …
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How do you deal with cough
How to deal with chronic cough
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Has anyone experienced hemoptysis (coughing blood) from airway clearance?
I had some blood issues when nebulizing 7% saline, so I started diluting it about 50/50 with .9% saline. Since then there has been little or no blood. Coughing blood can be scary. My docs want me to go to the ER if I cough a tablespoon or more. I don't …
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Settings for afflo vest (and a bit of grumbling)
I have hil rom mine i set on 14 for 20 min 2 times a day. Do not know if they have settings the same. I was told by a copd rep at the hospital in Sept for me to do levelalbuterol is generic xopenex then hypertonic 7% saline then do the vest. It does work …
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Does anyone wash their hair in the sink instead of the shower?
Happy New Year! I am curious if anyone else with Bronchiectasis/NTM washes their hair in the kitchen sink instead of the shower. After my first hospital experience 3+ years ago, I recall being told to avoid steam and the aerosols from the shower as much …
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Best Probiotics For Women 2025: Do They Justify the Price?
Probioticsplay a crucial role in maintaining digestive health, immunity, andoverall well-being. Choosing the right probiotic tailored to women’sspecific needs can provide long-term health benefits. https://www.deccanherald.com/dhsponsored-health/be...
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Have you checked out the MyPlate.gov website ?
The link below provides information on good nutrition and food apps: https://www.myplate.gov/
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Do you understand the difference between probiotics and prebiotics?
The link below, from the Cleveland Clinic differentiates probiotics from prebiotics: https://health.clevelandclinic.org/prebiotics-vs-probiotics-whats-the-difference
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Newer portable nebulizers
Hi,, I will be traveling soon and want a recommendation for a portable nebulizer. My searches have brought up info from 7-8 years ago. Can anyone recommend a newer portable nebulizer? thanks
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Have you read about the lung- gut connection?
More research is now being conducted on the relationship between our guts and chronic lung diseases; this research , the Gut / Lung Microbiome has really expanded over the past 9 years. Dysbiosis is the imbalance of good and bad bacteria within our guts. …
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Have you ever had a PH Impedance Testing done?
A 24 hour pH Impedance Test is a Gastrointestinal diagnostic test to check your upper Gastrointestinal system for issues such as GERD. The link below, from John Hopkins reviews the details of this test: https://www.hopkinsmedicine.org/health/treatment …
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Have you had an upper endoscopy/ EGD?
An upper endoscopy, also referred to as an EGD is a diagnostic test to see if an individual has acid reflux/ Gerd. The link below reviews the basics of this diagnostic test: https://www.healthline.com/health/gerd-endoscopy#treatment
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Do you understand the Basics of Acid Reflux?
The blog article below reviews the Basics of Acid Reflux vs. Gerd. The article includes a list of “ Do’s and Don’t s for Respiratory Patients with Acid Reflux/ Gerd: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community …
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Do you have any questions about the medical management of GERD/ Acid Reflux?
The educational video below, presented by Dr.Gwen Huitt reviews the medical management of GERD/ Acid Reflux. Great tips on preventative measures are provided in this video :ntmir webinar series Medical Management of GERD with Dr. Gwen Huitt
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Nebulising
I have had bronchiectasis for around 3 years & was recently diagnosed with mycobacteria abscessus. The lung specialist I have just seen is not real keen on prescribing a nebuliser (I am in Australia). I have just found a pulmonary rehab centre which I am …
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Do you have Acid Reflux?
The article below, is based on an interview reviewing 7 tips to lessen Acid Reflux , with Dr. Gwen Huitt, ( retired from National Jewish Health. https://cysticfibrosisnewstoday.com/social-clips/a-specialists-7-tips-for-preventing-reflux-and-aspiration/
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Pseudomonas
For the first time, my culture showed the presence of Pseudomonas. :-( How do I weig the pros and cons of to attempt eradication?
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Hello! Do you have an exercise plan in place?
Any exercise is better than no exercise for individuals who have lung disorders The link below reviews the benefits of exercise for the BNTM patient: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exercise
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Share Your Story - Symptoms and Diagnosis
What were the first symptoms that you noticed? How long (after the onset of symptoms) did it take for your diagnosis to be confirmed? Were you diagnosed with bronchiectasis, NTM, or both?
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Have you made any mental health goals for the new year?
Chronic illness can take a toll on one’s mental health. The comprehensive article below offers some helpful suggestions to assist you with your mental health goals: https://psychcentral.com/blog/how-to-stop-taking-yourself-so …
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Has anyone who’s received treatment for pseudomonas know whether it was/is mucoid or nonmucoid?
I’ve started treatment for PA mucoid variant. My pulmo chose Cipro monotherapy. I was inspired by those who commented about this as common and about treatments that worked to “eradicate” or at least minimize it as an issue for them. The literature about …
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Hello! Are you dealing with depression?
There are a lot more available resources to assist one with mental health challenges. Mental health can impact our physical health. Media coverage has expanded on mental health challenges since the pandemic, psych telehealth is now available. The link …
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Engage Explore Connect: January Word Search
Share how long it took you to finish! Have Fun!
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What difference can my participation in the online survey make for the BURDEN initiative by Insmed?
Your involvement can make a substantial impact by offering important information into the daily lives of those living with bronchiectasis (without cystic fibrosis), also known as Non-Cystic Fibrosis Bronchiectasis (NCFBE), and their family members. This …
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