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Have you had your Vitamin D levels checked recently?

The link below reviews the signs of vitamin D deficiency. Vitamin D plays a key role in our immune system and is especially important for individuals with chronic health conditions. https://www.medicinenet.com/14_signs_of_vitamin_d_deficiency/article.htm

Author: Ksmiles123
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1 Answers
What difference can my participation in the online survey make for the BURDEN initiative by Insmed?

Your involvement can make a substantial impact by offering important information into the daily lives of those living with bronchiectasis (without cystic fibrosis), also known as Non-Cystic Fibrosis Bronchiectasis (NCFBE), and their family members. This …

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Are you taking preventative measures to reduce respiratory infections?

The link below from the CDC offers detailed information on this subject: https://www.cdc.gov/ncird/whats-new/reduce-your-risk-from-respiratory-viruses-this-holiday-season.html#cdc_generic_section_2-now-is-the-time-to-take-action

Author: Ksmiles123
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Have you reviewed the NTM Management Tool lately?

This tool assists you with communication with your health care provider. Tips on managing NTM are also included in the link below: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/NTM_Management_Tool.pdf Please let us …

Author: Ksmiles123
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1 Answers
Nebulising

I have had bronchiectasis for around 3 years & was recently diagnosed with mycobacteria abscessus. The lung specialist I have just seen is not real keen on prescribing a nebuliser (I am in Australia). I have just found a pulmonary rehab centre which I am …

Author: Annnette
0 Votes
2 Answers
New therapies for COPD or Bronchiectasis?

Are you aware of new therapies for COPD or bronchiectasis that have just been approved or may be approved soon? If so, please share what you are hearing.

Author: ChristinaH
0 Votes
6 Answers
Are you getting out to exercise during this beautiful fall weather?

We may not always be up to exercising but exercise is highly recommended for better lung health. We can allow ourselves to take some off when we are not feeling well but we must try to push ourselves to do some type of exercise on the other days. The …

Author: Ksmiles123
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6 Answers
surgery and exercising

I was diagnosed last week with bronchiectasis. I am a physical education middle school teacher and am 49. I used to work out fairly regularly until I had to have a parathyroidectomy/thyroidectomy in the summer of 2017. It took half the year to get my …

Author: Sindy
0 Votes
10 Answers
Share Your Story - Antibiotics and GI issues

When I started with a new pulmo 2014 after diagnosing me with bronchiectasis we talked about zpak weekly but due to hearing loss a side affect of that antibiotic he was hesitant on giving me this. So I had my hearing checked and I had already lost …

Author: ChristinaH
0 Votes
5 Answers
Mucous Thinning

Has anyone tried the nebulized form of n-acetyl cysteine to help thin mucous?? I have discussed this with my doctor, and she has sent the prescription to several drug stores, and they have not been able to attain this drug. I live in New Jersey. Thanks

Author: oasisman
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Are you familiar with the term Rhinoviruses?

This is one term that is not frequently spoken about. Below is information on rhinoviruses from the CDC: https://www.cdc.gov/rhinoviruses/about/index.html

Author: Ksmiles123
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5 Answers
Clear ct scans with bronchiectasis

Does anyone that has bronchiectasis find that with an effective lung clearance technique that they have been able to achive a clean CT scan? Should that be the goal of therapy and is it possible? I'm going to have a bronchoscopy to suction some out and …

Author: PWW
0 Votes
3 Answers
Are you prepared for the cold and flu season?

Preparation of cold and flu toolboxes are strongly recommended. You do not want to sick and realize that you are out of the basic supplies. Going to the drug store when you are sick and fatigued is not good for you nor the other people in the store. The …

Author: Ksmiles123
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2 Answers
Do you currently use oxygen?

I'm currently on oxygen therapy and considering changing my user name to oxygen4evr.

Author: Ksmiles123
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7 Answers
Do you own a pulse oximeter?

Pulse oximeters are a small piece of plastic equipment that you place on your finger to check your oxygen levels. They are a noninvasive, reasonably priced and easy to use tool to use. The article below reviews the top rated pulse oximeters with the …

Author: Ksmiles123
0 Votes
12 Answers
Are any of you taking the Big 3 medications now? Are you able to tolerate them? If not, what are the

Adverse effects of the 3 major NTM antibiotics.

Author: Gretchen
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Have you read about the updated Medicare Part D coverage for 2025?

Good news! The max out of pocket limit has been reduced to $2, 000. The link below answered frequently asked questions about the updates in the Part D plan: https://www.medicarefaq.com/original-medicare/medicare-parts/medicare-part-d/medicare-part-d …

Author: Ksmiles123
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2 Answers
Do you have any questions about Medicare Part D?

Hi Katie! We're having a webinar on Thursday at 1:30 PM EST that will cover the changes in part D coverage in 2025. Here is the restistration link: https://copdf.co/medicareenrollment

Author: Ksmiles123
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Hello! Do you understand Medicare Part C- the Medicare Advantage Plans?

The link below is a lengthy review of Medicare Advantage plans vs. the traditional Medicare plans: https://www.medicare.gov/publications/12026-Understanding-Medicare-Advantage-Plans.pdf

Author: Ksmiles123
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Do you understand what Medicare Part B covers?

Medicare Part B covers two types of services. The link below reviews the details of what is covered by Medicare Part B: https://www.medicare.gov/providers-services/original-medicare/part-b

Author: Ksmiles123
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Do you use oxygen?

5 hours ago YouAndOxygenTherapy.com , created in collaboration with the American Thoracic Society, provides interviews/videos with both clinicians and oxygen therapy users. The above link provides very useful information on oxygen therapy to share with …

Author: Ksmiles123
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Do you currently use oxygen?

YouAndOxygenTherapy.com , created in collaboration with the American Thoracic Society , provides interviews / videos with both clinicians and oxygen therapy users. The above link provides great, useful information on oxygen therapy for you to share with …

Author: Ksmiles123
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Did you miss the recent webinar on “ How the Lab Works?”

Knowledge is power. Understanding how the lab works can lessen some frustrations on the BNTM journey. The you tube video reviews the basics of labs used for BNTM individuals: https://m.youtube.com/watch?v=gLieUFmA0q0

Author: Ksmiles123
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Are you familiar with the term “Palliative Care “?

Most people are not familiar with this term. Individuals with chronic conditions may be covered by insurance plans for these services.The link below reviews the services offered and th program in detail. https://my.clevelandclinic …

Author: Ksmiles123
0 Votes
3 Answers
Has anyone tried hydrogen inhalation therapy or hydrogenated water?

I have done some reading on hydrogen inhalation therapy. There are references to it being helpful with lung problems and covid, but not specifically to NTM. I have been trying inhaled hydrogen and drinking hydrogenated water for a few weeks and I think …

Author: KarenU
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