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3
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What kinds of medicines have you used in the nebulizer
I have altbuterol sulfate for my nebulizer. The problem is when I use it consistently I begin to have bad side effects. I get very shaky, can't stay asleep, headaches and generally fatigue. What has been found helpful for others. I do take a daily …
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0
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16
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Has anyone tried N-A-C or Quercetin (two different OTC supplement) to reduce mucus production?
Good morning! There was an article posted a while back that talked about NAC and Bronchiectasis, it may be something helpful with asking your doctor if it may be right for you. https://bronchiectasisnewstoday.com/2019/05/09/n-a...
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0
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12
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Bronchiectasis Diagnosis and Education
Learning that you have bronchiectasis can be overwhelming. What type of physician diagnosed you with bronchiectasis? How were you able to learn how to cope with your condition? Did your physician provide you education on bronchiectasis or did you do much …
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0
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7
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Share Your Story - Advice and Support
What is the best piece of advice that a health care provider has given you? Do you know anyone else who lives with the same condition? Where do you find support?
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0
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26
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Interested in an Informal Conversation with other Participants?
We would like to know if you would be interested in joining an informal meet-up on a group video chat (like Zoom). We know, with the COVID pandemic everyone is home and socializing is at a minimum. Would you like to meet other BronchandNTM360 …
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0
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4
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Re: Clofazamine
Hi everyone, my MAC is back for the third time and my local doc is talking to National Jewish about adding Clofazamine to my other 3 meds. It really looks scary the way it turns your skin colors 75-100% of the time. Has anyone else taken this. Are there …
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0
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2
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Colloidal Silver and lung infections
I have been diagnosed with a fungal infection in my lungs, so I have been doing a lot of research on colloidal silver. Some people are concerned about the darkening of the skin when using colloidal silver, but the research I have done indicates that …
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0
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1
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Reasons to avoid or stop exercising
I was looking at your site about the importance of exercise and Reasons to avoid or stop exercising: One of the reasons to avoid exercise is if your blood oxygen saturation is below 95% and that you should always use enough oxygen to keep your level …
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5
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United Healthcare refusing to treat certain conditions in the ER
Has anyone seen this article that states that United Healthcare is refusing certain non-emergency claims in the ER. If you have bronchiectasis, this is very concerning because, as you know, you can become seriously ill very fast with bronchitis, needing …
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0
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2
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Can I sit around a campfire without becoming short of breath and having a gut wrenching cough?
I sat around a campfire last night for about three hours. It's the first time I've been around a campfire since I was diagnosed with bronchiectasis. I coughed a good bit during the evening, but I thought I would be fine. I came home, used my nebulizer …
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1
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NTM/MAC in Kidney Transplant patient
Hello, my mom (71yrs) had a kidney transplant 7 years ago. She has recently been diagnosed with NTM and MAC. She has been doing breathing treatments for the last 3 months but the MAC is spreading and they want to start her on medications. Since she is on …
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5
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Share Your Story - Hobbies and Stress Relief
What hobby do you enjoy the most? Do you have any activities that you turn to for stress relief?
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Votes
2
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Video Chat Group for Bronchiectasis Patients
I am fairly new to this site, and I just saw the post about starting a video chat group for people dealing with bronchiectasis about 8 months ago. Was that ever done?
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Votes
5
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Lung Disease Management
Managing chronic lung conditions like bronchiectasis and NTM can be an all-encompassingtask. Many patients’ primary concern is clearing their airways. What other things do you do daily or weekly that you believe help manage your condition orimprove your …
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0
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2
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What diet is best for Bronchiectasis?
What diet is best for bronchiectasis
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1
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Tramadol (Ultram) for cough
I have Bronchiectasis and have had an uncontrollable cough for years. I nebulize saline and use albuterol and symbicort daily with minimal results. What really works for me is a low dose of Tramadol every six hours. I now have a cough I can live with.
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0
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3
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What is the best way to clean cpap equipment?
I was just diagnosed with sleep apnea. I need advice for cleaning the CPAP. I don't have the equipment yet but I wanted advice from people with Bronchiectasis.
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0
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2
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False Negatives
Has anyone experienced numerous false negative sputum sample results before they found the right Doctor/Laboratory?
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0
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3
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Share Your Story - Sharing with Family and Friends
Have you talked to your family about your condition(s)? If so, what details did you share? Any advice you can give to others who may be planning to share the news with their loved ones?
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0
Votes
9
Answers
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Has anyone seen ENT / voice center for cough?
I have been coughing constantly since last January. My pulmonologist is sending me to an ENT who is at a voice center. I'm wondering what to expect. I read about the center and found cough training listed but not much information.
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0
Votes
2
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What is GERD?
More diet tips
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0
Votes
4
Answers
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Has anyone taken the COVID Vaccine and what's your experience? Any issues?
COVID vaccine
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Votes
2
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St. Patrick's Day Recipes/Traditions
Hi all, thanks to those of you who joined our Coffee Break yesterday! With St. Patrick's Day in just a few weeks, I am posting some recipes that Ksmiles123 has shared (thank you, Ksmiles!). Do any of you have St. Patrick's Day recipes you're willing to …
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0
Votes
1
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Biologics as a treatment for Bronchiectasis related to IBD
I have Bronchiectasis due to Ulcerative Colitis(IBD). I am considering using a biologic agent (Stalera, Remicade, etc) as a possible treatment for the IBD/Bronchiectasis. I am curious if anyone on this board has IBD as a cause of their Bronchiectasis, …
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0
Votes
5
Answers
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Any contraption or non-medical device that improves your quality of life?
Do you have any item, like a de-humidifier, etc. that has a positive impact on your quality of life while dealing with a respiratory disease? Any recommendations?
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