Hello Trusted Friends, My lungs are colonized with MAC Avium, HIB, m. Abscessus has shown up a couple times, a little Aspergillus, and now my most recent culture grew out a fungus called Mucor. I have m. abscessus in my sinuses, too. The ID doctor …

I've been told that distilled water is best to use with NeilMed, which I do at home. But how do I manage that when traveling in Europe? What type of water do you use at home and when traveling?

Hello, my first time on this blog! In 2017 I began the 3-drug regimen of azithromycin, ethambutol, and rifampin. After 12 months with no side effects, my platelet count suddenly began dropping, which was attributed to the rifampin and I was taken off it …

I found a you tube video by Dr. Robert Bastian. He talks about a type of cough that is exactly what I have. His presentation is called Coughing That Won't Go Away. Has anyone seen this Doctor (near Chicago) or tried the medications he suggests?

I am wondering if they took a sputum sample to check what bus she may have? I was diagnosed 2014 but have asthma and emphysema.I am sure my bronchiectasis was caised from many lung infections. Xopenex neb followed by 7% hypertonic saline then go to the …

The patients and physicians at the recent Bronchiectasis and NTM conference in Texas implored all patients to exercise-saying it is a Critical Necessity!! What do you do on a daily or weekly basis to move your body and help your condition?

Recently diagnosed after ten years of “chronic bronchitis.” Prednisone and antibiotics knocked it out until last two years. My recent blood work shows compromised immune system, probably from me taking too much prednisone over last two years. Sputum …

Recently diagnosed with BE and live in Cincinnati and Phoenix areas. Looking for the right physician who specializes in BE treatment and can let me know how to fight and manage this disease. Your help is much appreciated! Thanks Greg

Hi, I am very newly diagnosed with Bronchiectatis, Mycobacterium Abscessus, and Aspergillus. I am feeling a little overwhelmed to say the least. I will be going to National Jewish Hospital in Denver for a second opinion sometime in the near future. My …

Because I have bronchiectasis I know I will always cough but this is tooooo much. I use nebulized 7% saline twice daily, use Symbicort twice a day and use albuterol inhaler several times a day. I take ranitidine twice daily for acid reflux. HELP, any …

I was diagnosed with pseudomonas a few months ago & had a hard time getting it resolved. They had to change antibiotics a few times.

Newbie here. Diagnosed last month with Bronchiectasis and severe Obstructive Sleep Apnea. I want to learn and I think many of you have already walked where I’m likely headed. First night last night on my CPAP machine. My Bronchiectasis not riled up right …

I have had Bronchiectasis for about 2 years. I started a prescription of Lexofloxacin for 7 days. After three days feeling much better I quit coughing up mucous. My question is WHY? I am happy about it, but I can't keep taking an antibiotic to feel good. …

The main idea behind controlling your breathing with Buteyko is that many people over-breath. I have found some success with this for Bronchiectasis. It take lots of practice, but it seems harmless and it's free.

The COPD Foundation is excited to announce that we are hosting a discussion with Dr. Addrizzo-Harris, a pulmonologist and professor of medicine at NYU Langone Health, and Dariel, an NTM lung disease patient, to talk about living with NTM. Be sure to tune …

I'm supposed to fly from SC to Denver on 12/20 for a week. My ritual is to go to bed around 10PM. As soon as I lay down I cough up phlem for a few minutes and then I can sleep for a while-usually. Then up at 7 and do my inhalers Then yogurt and coffee. …

I am going to be starting treatment for NTM and bronchiectasis very soon and I am very concerned about the side effects of the meds, particularly rifampin. Can anyone let me know how you dealt with the effects of discoloration of body fluids and how they …

I think the drug called INS1007 to treat Bronchiectasis not linked to Cystic fibrosis, Love to know anyone heard or is participating in the test?

Hi. I'm posting my very first question on this blog. My family member has been just diagnosed with Mycobacterium "Abscessus" Complex by a pulmonologist. From what I've read, I understand that it is extremely important to find an experienced NTM expert …

Hi - after treating MAI for a year with the big 3 (azithromycin, rifampin, ethambutol) with no improvement, we essentially doubled the dosage + used Amikacin via nebulizer (after a visit to National Jewish Health). Over a year later, the MAI was gone - …

My first culture results came back from December bronchoscopy. M. Fortuitum is growing. It is one of the so-called "fast growing" NTMs. Anyone else diagnosed with this one? Were you treated for it? I'm searching my references and don't find much …

I'm 2 weeks out from a bronchoscopy and I know I have more weeks to wait until the NTM culture is done/read, but I think aspergillus doesn't take that long. I was thinking the last time I had it done it was about 2-3 weeks. Does anybody know? Thanks!

I nebulize 3% saline and use the Aerobika and huff cough twice a day. (I have also tried the Acapella.) I ride a stationary bike and walk on a treadmill for aerobic exercise. Even with all of this I’m not very successful with mucus clearing. My …

Hi, everyone -- Just joined today! I've read this thread HTTPS://WWW.BRONCHIECTASISANDNTMINITIATIVE.ORG/BRO... and would love to know how things are going with Kim. I would also love any input that members can offer for my situation. My lung cancer is …

We are seeking quotes to inspire and gather encouragement when life gets us down. Living with a chronic illness can bring dark days and loss of hope. Is there a saying or a famous quote, a pearl of wisdom that brings some positive light to your life when …