Do any of you use Health Apps to manage your disease? Here is an interesting article from the Wall Street Journal about how certain apps help in the connection between health care professionals and patients. Any thoughts on this? https://www.wsj …

Wonder what foods may or may not affect my condition. Others with experience? Thanks for your responses.

I was diagnosed with this NTM in 2014, and recently my pulmonary doctor has told me he sees progression of growth in my CT's of suspect new activity of the disease. I thought we had beat it back. Now do I start all over? Doing the three tests AFB again. …

Hi everyone, Has anyone tried using masks when they travel to minimize risk of exposure to illness? What have you tried -- and have they worked for you? Thanks!

I do hypertonic saline 7% and it sure has helped me. Also NAC a supplement pulmo do recommend be sure to ask your dr first. My pulmo told me to double my dose I was doing 600 mg for the antitoxin affect till I got bronchiectasis. http://www.webmd …

I sent samples of the bio film in my showerhead to the university study conducted a couple of years ago. Did anyone here participate? Did you get your results? I've never heard back and now cannot even remember who did the study to follow up. Any …

As most of you know our now almost 19 month old has non-cf cystic Bronchiectasis. We have been trying to allow her to experience as many "Normal" activities as possible. One of these being swimming. See, we live in Texas and basically to survive a summer …

Hi all -- how do you approach expressing your needs re: your illness with friends and family? For example, if you need them to stay home when they have a cold so you can avoid infection or you would prefer to stay inside rather than engage in an outdoor …

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Ok guys we are going back to pulmonologist Monday for a follow up for our LO'S pneumonia. When we were told she had Bronchiectasis a few months back our pulmonologist never told us the severity, lung involvement(both or one lobe on specific), or if it …

That is is not going to get any better. I have ppl keep asking are you better do you feel better? There is no getting better. That is the hard part. I have never had this before even with my asthma and emphysema I had no mucus or cough only with an …

When you got your aerobika there was a booklet with it and that show how to hook aerobika and the neb together if that is what you want to do. Here is some information for you. https://www.nationaljewish.org/treatment-programs/...

https://www.statnews.com/2016/02/08/fda-crackdown-stem-cell-clinics/ There cracking down on so called stem cell clinics. All they do is take your money and you get no help and possible death. We did have a lady in our e-mail support group that went to …

My 16 month old daughter was recently diagnosed with bronchiectasis, and I am kind of at a loss as to what this disease looks like? And if anyone else has a child, or was themselves, diagnosed at such a young age. Thank you in advance for any and all …

What kind of Bronchiectasis/NTM educational efforts/programs would be useful to you?

It is with utmost sadness that we must share with you that COPD Foundation Founder, John W. Walsh, passed away surrounded by his loving family. We owe John a tremendous debt for his enduring commitment to curing COPD and bettering the lives of those …

Some people find in-person support groups very helpful. Does anyone have information on starting a support group?

I've heard doctors say that some patients need surgery to remove part of a lung even though the patient is already on treatment. Why is that?

I have bed toppers that look like flower pots that u put under the wheels of your bed. They look like upside down flower pots. It will bring the bed up about 6 inches. Bed looks funny at first but you get used to it.

my drs have differing options on how long to take the big 3 - i so want to stop the meds but am not sure who is giving me the best advice.....so i was wondering about everyone else and how long you took the meds before you were able to stop - norma

My doctor at National Jewish prescribed a daily routine of inhaling a 7% saline solution using an aerobika flutter device and a nebulizer in order to clear my lungs of mucus. I was wondering if anyone else was doing this and how it was affecting them.

How does someone know they are experiencing an exacerbation?

If anyone has any tips or recommendations, I would love to hear them !

Is there something I can do to prevent infections and at the same time help me breathe better

Good morning to all - I am very interested in learning about where people are living at time of diagnosis of MYCOBACTERIA infection and what type of NTM - This ? stems from trying to decide a possible better location to live - I myself live in Sebastian, …