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Does one need a pulmonologist specialized in bronchiectasis for treatment?
I have a rare eye disease and found that I needed to be with a doctor who specialized in the disease and did lots of transplants a week. The website I was on provided a list of doctors and also the experience people had with them. Is the same true if one …
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2
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On a CTScan can pneumonia lung scars be mistaken for bronchiectesis?
I may have been misdiagnosed by the scan doctor and two pulmonologists. I need to know if this is possible.
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3
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​Does anyone have difficulty with sleep, both getting to sleep and staying asleep?
Does anyone have difficulty with sleep, both getting to sleep andstaying asleep through the night, because of your Bronchiectasis and/or NTM? Ifso, do you have any tips to getting a better nights rest?
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11
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Are you on a probiotic? Which ones are best?
I've read that some probiotics are better than others for dealing with side effects from antibiotics. What have your doctors recommended? Have you noticed much improvement in side effects when you take a probiotic? Tomorrow's the day I see my doc to …
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1
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Do you recommend a certain type of Air Purifier?
I am looking into various types of Air Purifiers. Do you have a favorite? There are so many choices...I would love to hear your experiences, good and bad!
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2
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senses affected?
I am curious if any one affected by Bronchiectasis has lost their sense of smell or ability to taste? If so, was it temporary? ...
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3
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Preventing colds and infections
I'm just getting over a cold that had me home for a few days. (I think) I'm really observant about washing my hands, etc. but I seem to get a couple colds a year. What steps do you take to prevent colds and other resp infections?
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Preventing Falls
Yesterday was Falls Prevention Awareness Day -- how do you prevent falls in your own life? You may be interested in this post on COPD and falls posted this week: https://www.copdfoundation.org/Praxis/Community/Bl...
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1
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What germs do you have?
I was wondering what germs many of you have, if you happen to know? I was reviewing my medical records in preparation for a visit to my pulmonologist next Tuesday and was reminded that the last time I was sputum tested, I had these three germs. I think …
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3
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What is your daily routine? Lifestyle issues.
This is my daily routine. What is yours? Upon waking.......... Coughing and expelling mucous/phlegm for 40 minutes (average) in order to clear my airway passages. On bad days I can go for 60 minutes and my wife will help me by doing persuasion treatments …
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2
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How do you find your edge and maintain a line with breathlessness while exercising?
There has been some chatter about energy level and exercise, as well as breathlessness either while exercising or it holding you back from doing so at all. Does anyone have tips about finding your edge and managing your breathlessness?
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4
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NTM lung infection symptoms
Hi - I have had a history of bronchiectasis since 2005. The thing the doctors told me was to be careful if you catch a cold or flu as that can turn into pneumonia. Fast forward to fall of 2014, I had been having night sweats for years but now I felt …
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2
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Anyone on bedquilline?
Recently had to stop iv amikacin due to hearing loss. Still on rifampin and azythromycin. Waiting for bedaquilline which was approved by pharmaceutical co., Sirturo. Any side effects, efficacy of drug?
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3
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What is the relationship between Bronchiectasis and NTM?
As a novice to these diseases, I am curious about the connection, if any, between Bronchiectasis and NTM. Does anyone have information on this?
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Welcome Every one. Be sure to check out the resources
If you click on What is Bronchiectasis, you will see our first educational material created for you! Next on the agenda is to develop a 1s, 2s and 3s of Bronchiectasis. This will be a booklet modeled after the 1s, 2s and 3s of COPD. It will be …
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Share your Voice-What do you want to See Here?
What would you love to see more of on BronchandNTM360social? As far as resources, blog posts, information-are you more interested in Quality of Life information or medical knowledge? A blend of both? Let us know! This site is for you and we want it to be …
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4
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Exercise beneficial to the improvement of breathing
Exercise is better for all of us weather a lung disease or not. Us with the lung disease need to keep moving for our lungs. Most can maintain the lung volume by keeping exercising and if you do get sick the length of being sick maybe shorter than usual …
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3
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Best diet?
Is there a healthy eating plan one should maintain with Bronchiectasis? Does anyone have any food tips for preventing or getting rid of mucus?
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0
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What message would you send to lawmakers?
On Thursday my colleague Kristen and I had the opportunity to speak with some legislative staff regarding access to health care services. We were there to represent the voice of the patient and family perspective. We discussed the importance of Durable …
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Memorial Day/Weekend
I'm looking forward to Memorial Day/Weekend. I recently spent some time on an Air Force base in Las Vegas and it was an excellent reminder of the holiday and the wonderful country we live in. So grateful for the men and women who have (and continue to) …
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2
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Bronchoscopy
This is information for a bronchoscopy. http://www.healthline.com/health/bronchoscopy#Over...
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1
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Aspergillis (mold)
I have recently 3/2016 been diagnosed with a fungus in my lungs in addition to NTM ongoing infection. Do any of you have a diagnosis of Aspergillis flavus? I am attempting to gather some information or locate someone who has experience with this fungus.
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2
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Heat and Humidity
With summer around the corner, wondering what tips you have for dealing with increased humidity and heat?
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1
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Seasonal activities?
Environmental factors play a big part in Bronchiectasis and NTM. How do your activities change with the seasons? What are some new activities/hobbies you are doing with more daylight and warmer weather?
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1
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Joining the Research Registry
I know a couple of patients interested in joining the Bronchiectasis and NTM Research Registry - How can they join?
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