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Did you miss the recent webinar on “ How the Lab Works?”
Knowledge is power. Understanding how the lab works can lessen some frustrations on the BNTM journey. The you tube video reviews the basics of labs used for BNTM individuals: https://m.youtube.com/watch?v=gLieUFmA0q0
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Are you familiar with the term “Palliative Care “?
Most people are not familiar with this term. Individuals with chronic conditions may be covered by insurance plans for these services.The link below reviews the services offered and th program in detail. https://my.clevelandclinic …
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Has anyone tried hydrogen inhalation therapy or hydrogenated water?
I have done some reading on hydrogen inhalation therapy. There are references to it being helpful with lung problems and covid, but not specifically to NTM. I have been trying inhaled hydrogen and drinking hydrogenated water for a few weeks and I think …
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Did you miss the recent webinar on How the Lab Works?
Understanding how the lab works for BNTM patients is valuable information for the patient journey. Below is the video for the webinar. https://m.youtube.com/watch?v=gLieUFmA0q0
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Hello! Do you have any questions on Oxygen Therapy?
The comprehensive guide below reviews the basics on oxygen therapy. https://www.copdfoundation.org/Downloads/The_Supplemental_Oxygen_Guide_COPD-March-2020.pdf Please let us know if you have any specific questions.
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Who is the person you lean on for support on hard days?
Definition Caregiver or Support person A caregiver or support person can be defined as someone who helps with activities of daily living, picks up groceries, helps clean, provides transportation, accompanies you to the doctor and/ provides emotional …
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Which coping skills work best for you when you are feeling stressed?
The article below lists 71 different coping strategies to deal with stress and anxiety. https://www.happierhuman.com/coping-skills/
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Have you heard about Acceptance and Commitment Therapy?
Acceptance and Commitment therapy assist individuals to accept where they are on their health journey. Once acceptance is achieved, one can become more committed to take action steps to go forward in their lives to take action steps. The goal is to …
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Have you ever used a journal to vent your feelings about living with a chronic lung disease?
The link below provides a tool, entitled, Chronic Disease Management Through Therapeutic Writing- A Self-Care Tool https://healingworksfoundation.org/wp-content/uploads/2022/04/Chronic-Disease-Management-Writing-Prompts-1.pdf
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Are you interested in finding a therapist to discuss your health challenges??
The link below reviews the different types of counselors, and questions to ask the counselor before you make an appointment. Finding and Working with a Therapist – Healing Works Foundation
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Do you understand the basics of telehealth?
The infographic below reviews some basic information on Tele health: https://telehealth.hhs.gov/documents/BasicsofTelehealth_03-07-24.pdf
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Do you know how to do a huff cough?
The link below, from Cleveland Clinic includes step by step directions on performing huff coughs: Huff Cough: Huffing, Maneuver, Purpose & How To (clevelandclinic.org)
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Have you dealt with a power outage recently?
If not, below is information on preparing for power outages , including many links on the latest research on power outages: https://community.fema.gov/ProtectiveActions/s/article/Power-Outage-Make-an-Emergency-Plan-and-Prepare-Your-Home
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Do you have any Disaster Preparedness Apps on your phone?
Below is a list of 7 different apps you may be interested in placing on your iPhone: https://www.wired.com/story/best-emergency-apps/
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Have you received the pneumococcal vaccine?
There are several different types of this vaccine and it is often confusing to many people. Please scroll down to the bottom of the link below for the guidelines for the adult population: https://www.cdc.gov/vaccines/vpd/pneumo/hcp/who-when-to-vaccinate …
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Do you understand what the term “ splinting” means in regards to coughing?
The video below reviews the splinting technique: https://m.youtube.com/watch?v=5EP3Qdnp8u4
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Do you use combination inhalers and or combination nebulizers?
Combination Medications - Some inhalers and nebulizer treatments are available as combination therapy- one inhaler or nebulizer treatment contains more than one type of medication. Short-Acting Anticholinergics plus Short-Acting Bronchodilators : These …
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Have you ever wondered if there is more to your cough?
Non-tuberculosis Mycobacteria (NTM) symptoms include persistent cough with mucus, shortness of breath, tiredness, unexplained weight loss, night sweats, and coughing up blood. NTM lung disease is difficult to diagnose. Many people have it but do not know …
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Does anyone have a great wedge type pillow they recommend for inclined sleeping?
I’m looking for help with inclined sleeping which I find uncomfortable for my neck and back. I sleep on my left side mostly & sometimes on my back. I’m looking at the MedCline product which is pricey but looks ergonomically good. I have a standard wedge …
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Are you aware of the different types of flu vaccines?
The link below from the CDC, reviews the different types of flu vaccinations: https://www.cdc.gov/flu/prevent/keyfacts.htm#Flu-Vaccine-Options
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Are you planning on getting the flu vaccine in the fall?
The information below , from the CDC reviews the importance of getting the flu vaccination and other relevant information: https://www.cdc.gov/flu/pdf/freeresources/general/strong-defense-against-flu.pdf
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Why should I participate in the interviews for the BURDEN initiative by Insmed Incorporated?
Help uncover the challenges of Non-Cystic Fibrosis Bronchiectasis (NCFBE). The BURDEN initiative by Insmed Incorporated is seeking adults with NCFBE and caregivers for interviews. Your participation in the BURDEN initiative interviews is crucial for …
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Do you want to learn more about the Shingles
The link below provides an infographic on Shingles and the Shingles vaccination: ShinglesFlyer 2.pdf
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Do you understand who is in the higher risk group of a negative reaction to vaccinations?
The link below reviews the chances/ risks of people who are at higher risk of having a negative reaction to the vaccinations: https://www.cdc.gov/vaccines/hcp/acip-recs/general-recs/contraindications.html ACIP Contraindications Guidelines for …
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Coloring our hair
Hi, Has anyone with bronchiectasis had exascerbations or lung symptoms from coloring your hair? Thank you
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