The link below provides the basics on airway clearance: https://www.bronchiectasisandntminitiative.org/Portals/0/DownloadsLibrary/Files/Quick_guide_to_airway_clearance_Web.pdf Please let us know if you have any questions.

Most of us enjoy being outdoors, sitting in the sunshine throughout the summer months. However, we must be cautious while taking certain medications. Tge article below reviews the categories of medications that are most “ sun sensitive “,: https://www …

Hi! Not sure how to post this, so hopefully it works. I did not know if anyone was aware that there is a conference in San Diego this week - the 2024 NTM & Bronchiectasis Patient Conference. It is May 16-17, & they are still accepting registration for …

The blog article below reviews the benefits of exercise: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/51/NTM-Lung-Disease-Exercise

I was on 6 rounds of Steroids, including IV, for a severe mold allergy. Then diagnosed with MAC after.

Beliw is an article on the treatment of allergies: https://www.everydayhealth.com/allergies/treatment/

I have been diagnosed with Mycobacterium abcessus and Mycobacterium chelanae. Has anyone ever been cured from this? Does anyone know what life expectancy is? I am only 51 years old.

Hello. I am new to this site, but wanted to see if anyone can offer any input about tinnitus. I started azithromycin 500 mg three times per week and after one month, developed tinnitus and have stopped it. Does anyone have any experience with this and …

How have people tolerated Clofazimine (Lamprene) and/or Amikacin?

Have you heard if the term “ aspergillosis” before? It is a mold that can affect the respiratory system https://www.mayoclinic.org/diseases-conditions/aspergillosis/symptoms-causes/syc-20369619

The link below reviews the red flags of a possible exacerbation: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

The link below offers some suggestions for BNTM individuals who will be traveling over the upcoming months: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Travel

Practicing meditation improves the quality of life for many individuals. The article below from the Mayo Clinic explains the benefits of practicing meditation: https://www.mayoclinic.org/tests-procedures/meditation/in-depth/meditation/art-20045858

Who amongst the bloggers has had a Bronchoscopy and what did the results gain for you?

Question... I went from having no mucus or issues in 2023 to nonstop mucus every day. I was really sick in December but got well after a month of treatment. Since the beginning of March it has been different. I drink plenty of fluids, eat healthy and …

My mother had her right upper and middle lobes removed 2 weeks ago today. She has emphysema/COPD and NTM, diagnosed 2013. She is still extremely weak and on home oxygen. Has anyone been through this or have a family member that has been through this? Did …

I will be travelling to Greece this summer and will be purchasing a travel nebulizer. What nebulizer do you recommend? I also will not be able to disinfect my nebulizer cups and I read somewhere there are disposable cups. Anyone have any experience with …

I have experienced higher than normal platelet levels since I was diagnosed with bronchiectasis in 2015. Has anyone experienced the same?

The link below is the list of the top probiotics in 2023: https://www.healthline.com/nutrition/best-probiotic-supplement

The link below discusses the key components of a pulmonary rehab program: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Pulmonary-Rehab

Salt Therapy

A disease is rare when it only affects a small portion of the population. Even though each disease may be rare on its own, living with a rare disease is, in fact, quite common. About 1 in 10 Americans are affected by a rare disease. Unfortunately, most …

Has anyone gone through the nebulized tobramycin treatment that is being suggested by my doctor. From what I can find on the web, the 28 days on, 28 days off, and then 28 days of treatment seem to be relatively safe, with possible ear and kidney …

It is important to have a thorough cardiac workup as we age. Different medications can affect our heart health; it is good to have a baseline stress test. Below is information on the procedure: https://my.clevelandclinic.org/health/diagnostics/16984 …

Has anyone been able to get a months supply for less than $50.00? I got quoted a $30.00 price for 3% solution at Costco, but I need to ask my pulmonologist if that is as effective. Thanks