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4
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High cost of Hypersal 7% nebulizer solution
Has anyone been able to get a months supply for less than $50.00? I got quoted a $30.00 price for 3% solution at Costco, but I need to ask my pulmonologist if that is as effective. Thanks
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0
Votes
3
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Inhalers
Do inhalers work? I was given albuterol and bevespi. They were suppose to help with breathing but feel that they do not. I experience a rapid heart beat after taking the inhaler. I have bronchiectasis and they think possibly COPD. Not sure if they know …
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0
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6
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I believe blood should not be drawn from a PICC line?
When we have a PICC line and have NTM and or abscessus, can blood be drawn from the PICC line or should we insist on getting blood drawn from the other arm? And why is it considered dangerous? Infection?
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0
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Are you doing Airway Clearance regularly?
Airway clearance is important throughout the dry heat of the winter months and the peak flu/ RSV season. Below is a video on the subject with Dr.Pamela McShane: https://m.youtube.com/watch?v=L-EHohMe7II
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0
Votes
7
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Establish care with pulmonologist?
Hello, I was diagnosed with MAC and bronchiectasis, and referred to an Infectious Disease doctor. But I do not have a pulmonologist, which seems like it would be appropriate for bronchiectasis. Is it typical to not have a pulmonologist? And if I should …
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0
Votes
1
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Have you received the pneumococcal vaccine?
Below is information on the pneumococcal vaccine from the CDC: https://www.cdc.gov/vaccines/vpd/pneumo/public/index.html
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0
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0
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Are you cleaning your nebulizer devices correctly?
Below are videos on the different types of nebulizers and the different ways to clean them: https://www.copdfoundation.org/Learn-More/Educational-Materials-Resources/Educational-Video-Series.aspx
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0
Votes
5
Answers
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Experience with Lung Health Supplements
I have doing research on supplements to my neublizing solutions to help me manage my bronchiectasis. My sister-in-law saw an ad for Lung Clear so I did some research and found other supplements touted to help with infections and mucus issues. Does anyone …
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0
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Have you received the RSV vaccination?
Below is a patient video interview about RSV: https://m.youtube.com/watch?v=QkQnbwodtf8
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0
Votes
2
Answers
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Have you had your vitamin D levels checked lately? Are you eating a well balanced diet?
The article below discusses the role of nutrition and an adequate Vitamin D level to assist the immune system of individuals with bronchiectasis: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8116598/
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0
Votes
2
Answers
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Are you experiencing post nasal drip?
The blog article below reviews post nasal drop, causes and treatment: https://www.bronchiectasisandntminitiative.org/BronchandNTM360social/Community-Discussions/Blog/Article/167/Postnasal-Drip-in-the-Bronchiectasis-Patient
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0
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0
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Do you understand the different classifications of the most commonly used respiratory drugs?
The link below reviews the different types of commonly used respiratory drugs: https://respiratory-therapy.com/products-treatment/pharmaceuticals/us-pharmaceuticals/pharmacological-treatment-of-respiratory-disorders/
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0
Votes
0
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Is the heat drying out your nasal passages?
Hello! We are advised not to use humidifiers. Dry heat can really dry out our nasal passages; I use nasal washes at this time of the year. Other suggestions are to leave a clean pot of water in your bedroom at night. Cracking a window is suggested as …
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0
Votes
3
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Are your nasal passages extremely dry due to your heating system throughout the winter months?
I use a nasal wash at this time of the year to clean out my nasal passages. Otherwise, doctors have recommended to leave a pot of clean, recently boiled water ( 10 minutes) by your bedside or to open a window a crack if doable since humidifiers are not …
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0
Votes
2
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Littel helpful hints
Does anyone else get relief in the following two ways: 1. When I get phlegm stuck in my throat, I can sometimes get it loose with the use of Ricola cough drops (the original, not the sugar free) 2. Prior to bedtime, I use Neilmed saline rinse, but not in …
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0
Votes
4
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Are you considering getting the RSV vaccination?
Below is basic information on the RSV vaccination: https://www.singlecare.com/blog/rsv-vaccine/?utm_source=braze-sc&utm_medium=email&utm_campaign=10.20_Newsletter&lid=o2f3jolfejv4
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0
Votes
17
Answers
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Reduced lung function
So I’ve had Bronchiectasis for years with just some coughing. But this year in addition to 2 flares I get short of breath when I’m not flaring. My breathing is clear otherwise.. The shortness of breath has seemed to come on quickly. Has anyone else …
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0
Votes
6
Answers
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Medicare Part B payment for 7% sodium chloride vials
I have been trying unsuccessfully for months to arrange a way for Medicare Part B to pay for the 7% sodium chloride in 4ml vials that I use twice daily through a prescribed nebulizer to treat Bronchiectasis. I have consulted with my pulmonologist, …
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0
Votes
0
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Are you having trouble getting assistance with your mental health needs?
The link below reviews the different sources of mental health support, in person, on line, and the different types of facilities where m: https://www.webmd.com/mental-health/ss/cm/slideshow-where-to-get-mental-health-help
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0
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0
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Are you experiencing more mucus production in the winter months?
Cold, dry air may lead to increased mucus production. This is certainly the time of the year to do airway clearance regularly to avoid respiratory infections. The article below reviews the impact of dry air on our respiratory tract. https://www.cnet …
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0
Votes
10
Answers
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Bronchoscopy
Hi everyone, I am having PFT MTC and Bronchoscope next week, I just saw the Bronchscope on the orders. Now I’m scared from googling bronchoscope. Is it very frightening and uncomfortable while having the procedure or after? I have been on z-pak, then, …
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0
Votes
2
Answers
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Are you dealing with anxiety?
Below are 11 tips to assist you to deal with anxiety: https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/11-tips-for-coping-with-an-anxiety-disorder
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0
Votes
4
Answers
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retractable tubing device for long tubing on an oxygen concentrator
Has anyone used a retractable tubing device for long tubing connected to their oxygen machine, so that I do not trip over it?
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0
Votes
1
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Are you a caregiver?
Hello! Below is an excellent, heartfelt article written by Amanda Atkinson, RN,MS on Caregiving. Multiple links to resources are included in the article. https://www.copdfoundation.org/COPD360social/Community/Questions-and-Answers/Checking-In-On-Those …
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Votes
3
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does anyone know a specialist in equipment for oxygen machines in New York City
I need help in learning how to use the oxygen tanks in case of an emergency, in cleaning canulas and tubing, in finding aids to help me manage the long tubing and getting around the house, and advice on what other equipment to buy for help with using my …
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