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does anyone know a specialist in equipment for oxygen machines in New York City
I need help in learning how to use the oxygen tanks in case of an emergency, in cleaning canulas and tubing, in finding aids to help me manage the long tubing and getting around the house, and advice on what other equipment to buy for help with using my …
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tyvaso dpi
Has anyone found an insurance company in Medicare Part D that will cover Tyvaso DPI?
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8
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Not needing antibiotics for Bronchiectasis
I been having a rough time of it last few months been coughing for weeks not much brought up after all my neb meds saline and vest airway and the extra expap. Vent at night had to stop it for a while due to coughing. Now my Co2 went from 54 to 58 even …
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Are you feeling very stressed?
Ongoing stress can take a toll on our health and our immune systems Below is a stress screening test that you can take and get the results at completion of the test. https://psychcentral.com/quizzes/stress-test
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Since NTM is EVERYWHERE, how much caution is required to avoid exposure to NTM if you have bronchiec
This question was recently asked at a BNTM Coffee Social Event Since NTM is EVERYWHERE, how much caution is required to avoid exposure to NTM if you have bronchiectasis? KATIE: Basic precautions to avoid aerolized / inhaled NTM should be taken. Below is …
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How are you deal with the stressors of your health condition?
The article below reviews 16 ways to cope with stress. Can you identify a few that work best for you? https://www.healthline.com/nutrition/16-ways-relieve-stress-anxiety#15.-Spend-time-with-a-pet
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Are you feeling depressed for more than a few weeks??
Below is a depression screener test and information on depression: https://www.myhealth.va.gov/mhv-portal-web/depression-screening
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Is it typical for a Dr. to postpone taking the 3 medications with mild bronchiectasis and MAC?
This question was recently asked at a BNTM Coffee Social. Katie: Your doctor may want to monitor you if you are not symptomatic since the antibiotics themselves may present great side effects. Christina: The decision to start treatment is preferred yet …
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If a patient has been treated with antibiotics, can the sputum culture show positive again for NTM?
This question was recently asked at a BNTM Coffee Social. Christina: Katie is correct on that. I believe if the statistic is if you have had NTM before, you are almost 50% more likely to develop the infection again.* This doesn’t mean that you might get …
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Is a reduced appetite common while taking the Big 3 antibiotics?
This question was asked by one of our community members at a recent BNTM Coffee Social. KATIE: Yes, a lot of patients do get nauseous and are unable to eat while on multiple or single antibiotics. Medications are available that may stimulate your …
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Do you have questions on medication used for mental health conditions?
The link below from NAMI provides details on a list of commonly used medications for mental health issues such as depression: https://www.nami.org/About-Mental-Illness/Treatments/Mental-Health-Medications
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Are you dealing with heightened anxiety these days?
Below is a link on the different types of anxiety and treatment discussions https://www.nami.org/About-Mental-Illness/Mental-Health-Conditions/Anxiety-Disorders
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Anyone know of a breath-actuated mesh nebulizer?
Test Answer. Please ignore as this will be removed shortly
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How do you differentiate between the flu, RSV and Covid 19?
Below is a review of the most common symptoms of the flu, RSV, Covid 19: https://www.labcorp.com/coronavirus-disease-covid-19/covid-news-education/covid-19-vs-flu-vs-rsv-how-tell-difference
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Do you practice postural drainage techniques for airway clearance?
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Safe place to stay in Denver
Hi. I have an appointment with NJH. I will be there from 11/01 until 11/11. I have been told that there are areas of Denver that you do not want to stay in. Has anyone been there recently? Were you happy with where you stayed? Also, are there any tips or …
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covid vaccine
I have bronchiectasis. What is the consensus on getting the new Covid vaccine that came out in September. I read several articles that found the vaccine gave lung problems to some individuals. Thank you. Tahoe
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Cleaning nebulizer/airway clearance devices
I’m waiting for the April social notes but am really struggling with the sanitizing piece of this twice daily ritual. Right now I’m boiling at home 5-10 minutes. Air dry. Does anyone use cold sanitizing procedures? Alcohol, hydrogen peroxide or perhaps …
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Chair yoga
Have you ever taken a chair yoga class? Would you like to share your experience?
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Diagnosis
Can a diagnosis of bronchiectasis and NTM be made based on a chest x-ray alone? - Thanks!
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Do you understand the diagnostic work up for NTM/ Bronchiectasis?
Hello! The article below reviews the basic diagnostic tests done by health care providers to get an accurate diagnosis https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Diagnostic-Testing-and-Evaluation
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Have you tried diaphragmatic breathing or belly breathing?
Below is a link on information about this breathing practice: https://www.bronchiectasisandntminitiative.org/Learn-More/Learn-More/Breathing-Techniques
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9
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Should not be breathless anymore
Hello,I have the mildest form of Bronchiectasis. I have reached a point where my Specialist and my GP tell me I should be breathing normally now. I am still often breathless when doing housework or when I go for a walk, I still cough occasionally and …
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Post bilobectomy & MAC treatment
Hi all, I had a bilobectomy 5/3/23 after a bronchiectasis & MAC diagnosis December 2022. My pulmonologist said my future might be better since the bronchiectasis was very localized. I am 4 months postop & mildly symptomatic: cough, clear to white sputum …
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My life with Bronciectasis
My life with bronchiectasis. I am 30 years old and was diagnosed with bronchiectasis at the age of 12 after having a CT scan and bronchoscopy. Before that time, the doctors thought it was asthma but became suspicious when I did not show any significant …
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