BronchandNTM360social welcomes new member Linda17 who joins 5,070 current members of our community. We’re glad you're here!

360Coach Brandon

360Coach Brandon Hello everyone! 

Our next BronchandNTM360social Coffee Break is Wednesday, February 11, 2026 @ 2:30pm EST.

Michelle MacDonald, MS, RDN, CDCES will join us again to address "How your Lab Results and Nutritional Needs are Interrelated.” Time allowing, she will also address additional questions about nutrition for Bronchiectasis and NTM Patients from our November 2025 Coffee Break. Michelle is a registered dietitian nutritionist and certified diabetes care and education specialist who has 15 years of clinical experience as the dedicated dietitian to the infectious disease clinic at National Jewish Health. Currently, she works full-time in private practice, offering both virtual and in-person consultations. 

Resources:

Here is a link to a video of Michelle MacDonald on Nutrition. Sponsored by NTMir.

https://www.youtube.com/watch?v=30L2Ha4W_Nk

We will open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. Any health-related discussion will be held until the start of the meeting.

The meeting registration link is here: 
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration

Looking forward to seeing you soon!

2 days ago

Ksmiles123

Ksmiles123Hello! February is healthy heart month❤❤❤. Are you keeping good tabs on your cholesterol levels? The terms LDL, HDL and more  can be confusing The article below from the Cleveland Clinic reviews the different types of cholesterol and treatment options. https://my.clevelandclinic.org/health/articles/11920-cholesterol-numbers-what-do-they-mean

What Should My Cholesterol Levels Be?

Target cholesterol levels vary by your age, sex, family history and risk factors. But there are general guidelines.

22 hours ago

Ksmiles123

Ksmiles123

Hello! How are you doing today? Are there high winds in your area? High wind conditions can significantly impact respiratory patients. Cold Air: High winds can bring cold, dry air, which can irritate the airways and lead to bronchospasm/ bronchoconstriction, making it harder to breathe.  Symptoms like shortness of breath, coughing, or wheezing may occur in some individuals. Be prepared with a mask/ a good scarf if you must go outside your home on high wind days. Have your inhaler available if one has been prescribed by your health care provider. 

2 days ago

Ksmiles123

Ksmiles123

Heart Health Matters 💙 When you live with Bronchiectasis
or NTM, your lungs work harder every day. What many people don’t realize is
that your heart is working harder, too. Your Heart Is Part of Your Healing 💙
A strong, supported heart helps move oxygen, fight fatigue, and give you the
energy to keep going. When you care for your heart, you’re not just protecting
an organ — you’re supporting your entire healing system.

Simple heart-healthy small steps can make a real difference:

Choose foods that nourish, heart-healthy foods, such as a
balanced, anti-inflammatory meal

🚶 Gentle movement, like a
gentle walk or stretching, when able to do so

😴 Prioritizing rest and sleep-
rest without guilt

💧 Staying hydrated

🧘 Stress reduction, breathe
deeply, and calm your nervous system

Taking care of your heart is another way of taking care of your
lungs. You are more than your diagnosis. You are strong, resilient, and worth
the care. 💙 Do you have any heart-healthy practices that
you would like to share with the community?



2 days ago

Ksmiles123

Ksmiles123Hello! A basic review of the heart and lung connection: The
heart and lungs are confined within the chest cavity and share different
functions. When lung diseases reduce oxygen delivery, it can place stress on
the right heart. The heart pumps oxygen-poor blood from the right side into the
lungs via the pulmonary artery, where gas exchange occurs in tiny air sacs
called alveoli. I am not writing this to alarm you but to remind you that it is
important to keep an eye on your vital signs- your blood pressure, your heart
rate, swelling of feet and lower legs, and your cholesterol levels. Report any notable changes to your primary care provider; do not wait until an upcoming visit in three to six months. Your primary care provider may recommend an appointment with a cardiologist to do
further diagnostic testing. Cardiac diagnostic testing may include an echo, a stress test, or other tests. Let us know if you have any specific questions. Below is a video on how to take your own vital signs:
https://www.bing.com/videos/riverview/relatedvideo?q=vital+signs+you+tube+video&&mid=062CDD0C089341CCC7A3062CDD0C089341CCC7A3&FORM=VAMGZCvital signs you tube video - Search VideosWatch videos instantly on Bing—enjoy direct playback, discover related clips, and dive into trending content all in one place.

vital signs you tube video - Search Videos

Watch videos instantly on Bing—enjoy direct playback, discover related clips, and dive into trending content all in one place.

3 days ago

Ksmiles123

Ksmiles123answered the question time spent clearing airways

KB, I wish you the best! 1:1 coaching with a respiratory therapist is definitely worthwhile. I hope that you can get a less time consuming but effective airway clearance program in place soon.

4 days ago

Suepink1

Suepink1

Interesting read in the European Lung Foundation's (ELF) newsletter about a study into how menthol can help to relieve the feelings of breathlessness. Hopefully this link works, but if not, take a look at their site:Can menthol inhalation reduce the feeling of breathlessness? - European Lung Foundation

4 days ago

baileymccrary

baileymccrary

Hi everyone! Yesterday, Congress advanced and the president signed the Consolidated Appropriations Act of 2026. This funding package includes several big "wins" for the lung health community!:


- COPD Foundation/Bronchiectasis and NTM Association priority report language accompanying the National Institutes of Health (NIH) budget
- Overall budget increase for the NIH
- Two-year extension of Medicare coverage for virtual pulmonary rehabilitation
- Restrictions on "forward funding" to provide more research funding
- Limits on indirect payment caps for research


Our lung health community's tireless dedication on advocacy helped make these "wins" possible! Thank you for your support of these policy priorities throughout 2025. Everyone should be very proud of their hard work that contributed to better policies for the lung health community.


Thank you to everyone for your passion and commitment for better lung health policies. We are incredibly proud of our community and look forward to more policy "wins" in 2026!

4 days ago

TimD

TimD created the event February 2026 BronchandNTM360social Coffee Break

Hello everyone! Our next BronchandNTM360social Coffee Break is Wednesday, February 11, 2026 @ 2:30pm EST. Michelle MacDonald, MS, RDN, CDCES will join us again to address "How your Lab Results and Nutritional Needs are Interrelated.” Time allowing, …

5 days ago

Ksmiles123

Ksmiles123

Hello! Do you fully understand the connection between the lungs and the heart? The link below from the Cleveland Clinic , including an infographic reviews this important information: https://www.nationaljewish.org/education/health-information/infographics/whats-the-connection-your-heart-can-affect-your-breathing
Please let us know if you have any specific questions. 

5 days ago

KB

KBasked the question: time spent clearing airways

Hi. My diagnosis is mild bronchiectasis. Typically I have to clear airways every 4 to 5 days. But it takes me up to 3 hours to clear airways start to finish. From what I read on this blog, I am slow! Currently steaming for 15 minutes, nebulizing with …

5 days ago

KB

KBanswered the question Allergy related bronchiectasis flareups

Thanks for all this feedback. I am seeing allergist/immunologist and pulmonologist. Answers soon I hope but its looking like allergies exacerbate the bronchiectasis; flares, cold adds to it as you all knew. Its nice to have people to talk to about this. …
Ksmiles123 also answered the question Ksmiles123 also answered the question

5 days ago

Ksmiles123

Ksmiles123Hello!This has been the longest cold stretch that I can remember.  Staying indoors for extended periods of time can take a toll on some individuals. 
Are you dealing with Cabin Fever? The link below, from Medical News Today, defines Cabin Fever and Ways to Cope with Cabin Fever: 
https://www.medicalnewstoday.com/articles/cabin-fever

Cabin fever: Definition, symptoms, and how to cope

Cabin fever describes the psychological symptoms that a person may experience on being confined to their home for extended periods. Learn how to manage it here.

6 days ago

Ksmiles123

Ksmiles123The Groundhog predicts six more weeks of winter 🥶!!!!On my! We must work together to bring the sunshine ☀ in on this site!!!! I can’t wait to enjoy beautiful warmer, spring days. 

1 week ago

Ksmiles123

Ksmiles123answered the question Has your Pseudomonas infection cleared and then reoccurred?

Das23, Hello! Thank you for sharing your update. I am glad that Colistin is working for you. Thank you for the information on the drug under current research. We must always hold onto Hope- so much has happened in the BNTM space over the past decade.
DAJ also answered the question DAJ also answered the question

1 week ago

DAJ

DAJasked the question: Brinsupri Results

If anyone is on Brinsupri, I would love to hear your expeience

1 week ago

KB

KBasked the question: Allergy related bronchiectasis flareups

Currently undergoing allergy shots. Lately any exposure to outside air flares the bronchiectasis. Are these flares likely to increase the frequency of the need to clear lungs or will the frequency return to what it has been? When at maintenance with …

1 week ago

Ksmiles123

Ksmiles123

Hello! Welcome February.We just got through one of the coldest Januaries I can remember. I hopethat you are keeping warm and safe.Extreme cold weather can result in bronchospasm in some individuals; itis best to have your rescue inhaler or nebulizer available when needed. Groundhog Day is tomorrow- let’s see what Punxsutawney Philpredicts tomorrow. There are 46 days until spring, on March 20th.Yippee!!! Spring is my favorite time of the year since I love being outdoors, and it is neither too cold nor too hot. 
Throughout the month, we will focus on the following topics: heart and physical health, exercise, nutrition, the Gut Microbiome, GI testing-EGD/Endoscopy, Manometry, and Colonoscopy. Lastly, we will review Acid Reflux and other comorbidities, such as theassessment and follow-up on a hiatal hernia diagnosis.

1 week ago

Ksmiles123

Ksmiles123International Quality of Life Month is observed in January, highlighting ways individuals can improve the quality of their lives. This is the first year that I have heard about this worthwhile celebration! The goal is to encourage people to assess their current lifestyles and improve their physical, mental, emotional, and social well-being. The month aims to motivate people to take control of their lives, develop a sense of purpose, and improve overall happiness and satisfaction. Many of us have heard this term used repeatedly at webinars; new medications/ treatments are aimed at improving the quality of life for BTM individuals. What action steps are you taking towards improving the quality of your life?

https://nationaltoday.com/international-quality-of-life-month/

International Quality of Life Month

International Quality of Life Month focuses on how people can attain happiness in the long run.

1 week ago

  • NewestOldest
  • 360Coach Brandon Thank you for sharing, Katie. Quality of life really matters when you’re living with bronchiectasis or NTM, and it looks different for everyone. It’s not just about treatments -- it’s about feeling supported and remembering that taking care of ourselves goes beyond the medical side of things.1 week ago
  • Ksmiles123Brandon, 
    I agree with your comment wholeheartedly. We are more than our physical beings, we have individual psychosocial needs. We all need some support to keep going forward. Let’s use this language “ quality of life “ more often when we speak of goal setting. 1 week ago
Ksmiles123

Ksmiles123

Hello! We all experience good days and challenging days. We need to have a toolbox of activities/ ideas to assist us on challenging days. Below is a link to 101 Activities to Boost You When You are Feeling Down, from Psychology Today Magazine. Activities included in the article are for a diverse range of age groups. Do you have a favorite activity in your toolbox that boosts your mood on a challenging day? https://www.psychologytoday.com/us/blog/mapping-your-mental-health-journey/202404/101-activities-to-boost-your-mood?msockid=0ca9b0b92ddf6727275ca33b29df6150

1 week ago

Ksmiles123

Ksmiles123

Hello! We want to take a moment to talk about the social and
emotional side of living with a chronic condition—something that often doesn’t
get enough space or conversation. For many people, chronic illness can affect
mental and emotional well-being in real and lasting ways. Some of those
experiences may include: 
·
Relationships feel different. Living with a
chronic condition can change how we connect with loved ones. It may be hard to
explain what daily life feels like now, ask for support, or adjust to a “new
normal” together. Bronchiectasis and NTM are invisible conditions and are often
misunderstood, which can add another layer of challenge. 
·
Medical stress and burnout. Many people with
bronchiectasis or NTM spend years searching for answers before receiving a
diagnosis. Some have felt dismissed or not fully believed along the way, which
can be exhausting and discouraging. On top of that, ongoing appointments, phone
calls, and insurance hurdles can be overwhelming—especially when it is ongoing,
not just an occasional task. 
Let us know if you can relate to either of the effects of
chronic illness listed above. You are not alone; we are here to support you on
your journey. Knowledge empowers people
to keep going forward. Learning how to communicate effectively with our
families, friends, and health care professionals is the key to a better quality
of life. Community support enables us to get the assistance we need. We are
here to walk alongside you and support you on your journey.

1 week ago

Ksmiles123

Ksmiles123answered the question Are you using a nasal wash?

Das23, Glad you are using nasal washes. Tis another tasks on our healthcare list but I feel it is definitely worth the time. Have a pleasant day
das23Suepink1 also answered the question das23and 1 other also answered the question

1 week ago

Ksmiles123

Ksmiles123asked the question: Are you using a nasal wash?

Nasal washes are solutions used to rinse out your nasal passages and sinuses using a saline(saltwater) mix. I find using these washes beneficial, especially throughout the winter months when we are dealing with dry heat in our homes. These washes …

1 week ago

Ksmiles123

Ksmiles123

Hello! Spring is my favorite season. There are 53 days until spring, on March 20th. 😍 I know that we are supposed to live in the present moment and I attempt to do so. Do you have a favorite season? 

2 weeks ago

Ksmiles123

Ksmiles123answered the question Sputum sample collection difficulty

SuePink, They would prefer a one time sputum but this is the 2nd best way of getting adequate sputum for some individuals. I have done this many times over the years; they will reject the specimen if not an adequate amount, or other reasons. I wish you …

2 weeks ago

Ksmiles123

Ksmiles123

Hello! Many of us are housebound due to the severe cold weather
conditions throughout the USA. Scrolling
through social media or watching the weather reports all day is not good for
us. Diversional indoor activities are therapeutic pastimes. Hopefully, there’s
something on the list below for you to enjoy.

Learn a new skill, such as knitting or painting. Cooking and
baking are great activities to do on a snowy day. You can try out new recipes or
make some of your favorite comfort foods. Search online for some winter recipes
or check out this list of winter comfort foods.

Reading -you can curl up with a good book or magazine.
Practice some relaxation techniques like meditation, yoga, or deep breathing
exercises to help you unwind and de-stress. There are many free programs on
YouTube or free apps.

Movie Marathon- grab some blankets, popcorn, and your
favorite movies for a cozy movie marathon or watch old TV shows. I have been
watching Johnnie Carson reruns that are very entertaining.

Board Games and Puzzles are classic snow day activities that
never get old. Try some arts and crafts if you are feeling creative. Check out
winter craft ideas online for some inspiration.

Treat yourself to a home spa day? A warm bath with some
Epsom salts and essential oils, homemade face masks and body scrubs.

Writing is a great way to spend this alone time because you
can express your thoughts while also having a creative outlet. There are so
many different methods that you can use to improve writing skills, such as
journaling, blogging, and writing a short story. Getting your thoughts on paper
can be therapeutic, whether you write about things that are happening in your
life or someone else's life. I hope that
you enjoy some activity to take your mind off what you cannot control. Do you
have a favorite pastime activity?

2 weeks ago

Suepink1

Suepink1asked the question: Sputum sample collection difficulty

I've been through all processing for the Airtivity clinical trial, and all good so far. Now the stumbling block for me is to produce a good sputum sample. Apparently I won't get on the trial if I cannot produce two good samples. I am not allowed to use …

2 weeks ago

Ksmiles123

Ksmiles123Hello! Extreme cold temperatures are affecting many parts of
the USA. Below is some basic information on hypothermia and frostbite.

Hypothermia- Cold, dry air can trigger bronchospasm, coughing,
chest tightness, and shortness of breath. People with already-limited lung
function may feel sudden fatigue, dizziness, and worsening breathlessness. Cold
exposure can weaken immune defenses in the airways. Thickened mucus becomes
harder to clear → higher risk of exacerbations or infections.   Hypothermia early symptoms: Shivering that may stop as it
worsens

• Slurred speech, confusion, or brain fog

• Rapid breathing at first → slow, shallow breathing later

• Blue or pale lips/fingertips.

Frostbite most often affects an individual’s fingers, toes,
nose, and ears. Respiratory patients are at higher risk because of reduced
circulation from chronic illness or medications. Also, fatigue may delay
noticing symptoms.

Early frostbite signs: Numbness or tingling

• Skin turning pale, lighter color

• Loss of fine motor control

Cold-weather protection that actually helps: Cover your airways-wear
a scarf, gaiter, or mask over nose & mouth→ warms and humidifies inhaled
air. Protect extremities with mittens, gloves, cover your ears fully, wear
insulated socks, and layer your clothing.

Please stay warm and safe throughout this cold spell. For more
information, please see the link below: https://my.clevelandclinic.org/health/diseases/15439-frostbite

Frostbite: Signs & Symptoms, Stages, Treatment & Prevention

Frostbite is skin damage that happens in freezing temperatures. Symptoms include pain, numbness and skin discoloration.

2 weeks ago

Dianne

Dianne

Fair, recovering (I hope) from an exacerbation. 

2 weeks ago

Suzanne H

Suzanne H

Hello Everyone, I'm new here from Texas. Home sick today with stomach flu and tired of coughing... hoping its not something more. Struggled with getting in to see a doctor this morning and was not successful. I'm very frustrated with that. Does anyone have suggestions on being able to reach a doctor quickly when you need them? I'm new to Bronchiectasis. 

2 weeks ago

  • NewestOldest
  • das23Welcome ... If you think you need the doctor you could go to an ER or an Urgent Care2 weeks ago
  • Ksmiles123Suzanne,
    Hello! Welcome to the community. I am sorry to read that you are not feeling well.  Do you have an established relationship with a pulmonologist?  Many are now doing telehealth visits after you have had your initial visit in person.  Telehealth really offers a great service, especially throughout the winter months.
    Otherwise, there are urgent care centers for walk-ins.  I hope that you get the assistance you need and that you feel better soon. 2 weeks ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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