BronchandNTM360social welcomes new member Sueshi who joins 5,106 current members of our community. Weโ€™re glad you're here!

Ksmiles123

Ksmiles123

Hello! Many BNTM patients donโ€™t understand the need for a
gastroenterologist. We are often
overloaded by the number of specialists that we are advised to see. I am
reviewing basic GI testing so you can be empowered to understand and ask the
right questions when you do see a gastroenterologist.

๐ŸŒก๏ธ Esophageal pH monitoring
measures acid levels in your esophagus. It tells your doctor: How much acid is
refluxing from the stomach into the esophagus. How often reflux happens, and
how long acid stays there.

What does โ€œpHโ€ actually mean? pH is a scale that measures acidity:
7 = neutral, below 7 = acidic. The lower the number, the more acidic your
stomach is; stomach acid is very acidic (around pH 1โ€“3). Your esophagus should
not be exposed to that acid frequently. If testing shows repeated drops in
esophageal pH below 4, it usually indicates significant acid.

๐Ÿ’ก Why This Matters for BNTM-
significant acid can weaken the lower esophageal sphincter (LES) and the
esophageal clearance, which is how well acid is pushed back down. This can lead
to: chronic reflux, silent reflux, inflammation, difficulty swallowing, and or
chest discomfort.

pH testing helps determine whether acid is truly the
cause of symptoms; it checks whether acid is damaging the esophagus or if
something else is going on. pH testing can be done the traditional way, with a
thin catheter placed in your nose or with a Bravo Capsule (a camera inserted
into your esophagus) during an EGD. Please discuss these options with your
healthcare provider. Understanding what is really going on in your upper
gastrointestinal system will determine what meds are most suitable for you. You
do not want to be on the wrong medications for an extended period of time.

5 hours ago

Ksmiles123

Ksmiles123

Hello! Staying proactive about your health isnโ€™t optional โ€”it
is essential for our community.๐Ÿ” Early Insight = Better Outcomes.
Has your healthcare provider suggested Manometry for you?

Manometry helps detect non-obvious changes before symptoms become
serious. Catching issues early means more treatment options, less invasive
interventions, and better overall health management. Testing gives your
healthcare team measurable data โ€” not guesses โ€” so they can monitor progression
and adjust treatment at the right time.

If you are a BNTM patient dealing with reflux, or unexplained
digestive symptoms, manometry testing can be a game-changer. Performed by a
gastroenterologist, manometry is a specialized test that measures how well the
muscles and nerves in your digestive tract are working and how well the lower
esophageal sphincter,(LES) opens and closes

Why It Matters for BNTM patients:

โœ… Identifies swallowing disorders
(dysphagia)

โœ… Diagnoses motility disorders
Conditions like esophageal spasm or ineffective motility

โœ… Guides treatment
decisions-results help your care team choose the right medications, therapies,
or interventions.

โœ… Prevents complications-
untreated motility issues can lead to malnutrition, aspiration, or worsening
reflux. Manometry isnโ€™t just a test โ€” itโ€™s a roadmap for your healthcare
provider.

23 hours ago

Ksmiles123

Ksmiles123asked the question: Do you understand the difference between Manometry and Ph testing?

The Key Difference between the two: Manometry = How the muscles are working pH monitoring = Determines whether acid is coming up and how much Together, they give a complete picture of function and acid exposure, which is especially …

23 hours ago

TimD

TimD created the event March 2026 BronchandNTM360social Coffee Break

Hello everyone! Our next BronchandNTM360social Coffee Break is Wednesday, March 11, 2026 @ 2:30pm EST. This month weโ€™ll be joined by Divya Reddy MBBS, MPH to discuss exacerbations and the role DPP1 inhibitors (such as Brinsupri) have in minimizing …

1 day ago

Suepink1

Suepink1

I'm off my Ciprofloxacin after two weeks, was meant to be on it for three, but my lower legs seemed to belong to someone else, and I misjudged a step while boarding a train and fell hard onto my knees.   No real damage done.   However, while I was on the Cipro and I can now confirm it was that because the side effects have stopped, I couldn't walk further than about 250m without feeling my lungs would explode, struggled up our driveway which probably has a 15 degree incline, had increased chest pain and then of course, the tingling lower legs.   Doctors said those type side effects were very rare so probably not the Cipro causing it.
Hmmm, so how do you 'make a fuss" about it so they take you more seriously.

I think I'm sensitive to a lot of the medications, hence I reckon I'd be one of the best clinical research guinea pigs!
All good now though - sort of...

2 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • Ksmiles123SuePink,
    Hello! I am so glad that you are okay and did not sustain any injuries from your fall.  Many people are sensitive to certain chemicals, such as antibiotics.  Have you had a good GI workup recently?  Sensitivities are frequently seen when someone has digestive issues.  Were you well hydrated? Some people drink less fluid while they are traveling. Have you had a thorough cardiac workup as well?  You can make a fuss if you want, only you know your body and side effects- you can report the side effects to the FDA. I would certainly stay away from Cipro for a while.  I hope that you continue to feel better soon.
    1 day ago
  • LucindaI would be a clinical research guinea pig as well. I react oddly to most all medications. I'm the 1 in 1 million on the package insert to have a rare reaction. I've read there are certain genes that play a role in a persons hypersensitivity to medications. It would be interesting to know more. I would always be upfront with your prescribing provider and make them aware of your sensitivity. I do this with every provider I see. They usually start me off with the lower than usual dose. It's been helpful. 22 hours ago
  • Ksmiles123SuePink, Lucinda,
    You are making me feel better- I am also that person who experiences adverse effects from drugs and supplements that make my healthcare providers roll their eyes, and saying- โ€œ I never heard of that type of reaction before โ€œ. 22 hours ago
Ksmiles123

Ksmiles123

Hello! Have you had an Endoscopy recently? Why Do Bronchiectasis & NTM Patients Get One? Think of an endoscopy as a tiny camera tour inside your body. A doctor gently guides a thin, flexible tube using a light and a camera through your mouth to examine your esophagus, stomach, and upper small intestine. It sounds frighteningโ€”but most people are comfortable and sleepy during the procedure, and it usually takes 15โ€“30minutes. Why It Matters for Bronchiectasis & NTM Patient in BNTM lung disease, gastroesophageal reflux (GERD), and aspiration are major hidden contributors to lung damage. Many bronchiectasis/NTM patients have: Acid reflux, weak lower esophageal sphincter, hiatal hernia, and or delayed gastric emptying. Refluxed acid or food can travel up and be micro-aspirated into the lungs, worsening infection and inflammation. Endoscopy helps detect: Esophagitis, Barrettโ€™s esophagus, Hiatal hernia, and Severe acid damage. Patients without classic heartburn may have โ€œsilent reflux.โ€ Preventing Ongoing Lung Reinfection- Repeated aspiration can: Feed NTM organisms, worsen bronchiectasis, cause chronic cough, and reduce antibiotic effectiveness. Evaluating Medication Side-Effects: These can cause: Gastritis, Ulcers, Esophageal irritation. Endoscopy helps identify damage if patients report: Persistent nausea, Pain when swallowing, Upper abdominal pain. Nutritional Issues- Many BNTM patients struggle with: Low body weight, Poor appetite, Malabsorption. Endoscopy can check for: Gastric inflammation, Ulcers, Celiac disease, and structural issues affecting intake. Please let us know if you have any specific questions.

2 days ago

LorenW

LorenW

Hello All. I have recently been diagnosed with NTM/Bronchiectasis. I am 52 years old. I have not started treatment yet, and Iโ€™m very anxious. I had all the testing done last week ( sputum sample, blood tests, pre/post spirometer) Iโ€™m scheduled for a bronchoscopy and sweat test. I was diagnosed with high blood pressure a year ago. I am on Telmisartan and Hydrochlorothiazide.and propranolol. Even with medication, my BP is still high. I was rushed to the ER on Sunday because my left pupil was much larger than my right, which can be a sign of stroke or aneurysm. They did a CT of my brain and itโ€™s clear. My BP was very high. I have also had a hard time sleeping. I donโ€™t feel tired and when I try to sleep, I feel restless. I have reached out to my Infectious disease physician at National Jewish and have not received a call back. Iโ€™m wondering if my high blood pressure is because of the inflammation. Also, whatโ€™s the deal with my left eye? It feels irritated all the time. I saw an optometrist and he couldnโ€™t see anything. I canโ€™t seem to get any answers and Iโ€™m very frustrated. 

3 days ago

  • NewestOldestClick to View All Comments4 comment(s)
  • 360Coach Brandon Hi LorenW, we're glad you're here, though it sounds like you have had a rough journey for sure. I hope you can find comfort and answers for what is happening with your blood pressure.3 days ago
  • LorenWThank you so much for the thoughtful recommendations. I will follow up with my PCP. 3 days ago
  • Ksmiles123Loren,
    You are most welcome! Some PCP offices have walk in hours- I hope you can get to communicate with your PCP soon in person, via phone or the portal.  Make sure staff know that this is an urgent matter, and that you were in the ER for this last weekend.  Please seek urgent care if your symptoms , blood pressure gets worse if you are not getting a response from your PCP in a timely manner. Your health is your priority. 3 days ago
KC

KC

Has anyone had wedge resection to remove diseased part of lung where bronchiectasis is localized. I've had MAC 4 times and surgery is being suggested. I'm 72 and concerned about risks vs benefits and am curious how you fared, what healing time was and if symptoms of cough and shortness of breath improved drastically.

3 days ago

  • Ksmiles123Hello! I have heard relief from patients who have had this surgery. It is not a super invasive surgery but any surgery depends upon your comorbidities and current state of health. I would highly recommend getting it done at a hospital that does a large number of these cases by a very qualified surgeon. 
    Recovery after lung surgery for NTM typically takes 3 to 6 weeks, with most patients hospitalized for 2 to 4 days post-procedure. Walking begins the day after surgery, and you'll be prescribed oral pain medications that taper over several weeks. Many people achieve culture conversion and successful infection control.3 days ago
Ksmiles123

Ksmiles123Hello! While many of us are safely inside during todayโ€™s blizzard in the northeast , there are extraordinary healthcare workers showing upโ€”again and againโ€”through the snow, the wind, and the long and challenging hours. I was stuck at a hospital for 3 days during a blizzard, while working as a nurse many years ago. To the nurses, respiratory therapists, physicians, techs, and support staff caring for patients with bronchiectasis and NTMโ€ฆ thank you. Your dedication ensures treatments continue, airways stay clear, and patients feel supportedโ€”even on the toughest days. If youโ€™re a patient or caregiver, take a moment in a few days to send a message of gratitude to your healthcare provider who is working- It matters more than you know.Stay safe. Stay warm. ๐Ÿ’™

4 days ago

Karaboo

Karaboo

Anyone have any experience with brinsupri

4 days ago

Ulcerative colitis/Bronchiectasis

Ulcerative colitis/Bronchiectasis

Asking if certain states are better for living with Bronchiectasis in the lungs. I live in Maine and cold weather triggers minor to major flares. 

4 days ago

  • Ksmiles123Hello! Cold weather can trigger flares in some individuals. Are you doing airway clearance? Do you have a rescue inhaler, bronchodilator to assist you on these very cold days? There is no perfect place to live- it is best to avoid severely hot, humid places as well. We have assistance available for you in many forms. In addition to the community support you receive here on BronchiectasisandNTM360, you can call one of our Patient Ambassadors directly by phone atโ€ฏ(833) 411-5864. Our Ambassadors are real live patients with experiences similar to yours and understand  your concerns. You can alsoโ€ฏemail us at contactus@bronchandntm.orgto get more information aboutโ€ฏany climate questions .โ€ฏ Our Ambassadors canโ€™t provide medical advice but may be able to assist you with additional information on the impact of weather and your respiratory health. 4 days ago
Ksmiles123

Ksmiles123

Hello! Are you a caregiver? There are support Groups- online
and in-person support groups provide a platform for caregivers to connect with
others facing similar challenges. These groups allow for sharing experiences, advice,
and emotional support. The link below includes information about our BNTM 360
Social Monthly Coffee Breaks, NTMir link for in-person local support groups,
and information about support through the BNTM Care Center Network:
https://www.bronchiectasisandntminitiative.org/Learn-More/Educational-Materials-Resources/NTM-Support-Groups

Educational Resources- this site, Bronchiectasis and NTM offer
educational materials in the menu above on the right-hand.

I have been a BNTM patient, a nurse, and a BNTM patient
advocate for a long time. I have firsthand experience as a caregiver of a
family member who has metastatic cancer for many years. I have witnessed a lot throughout
the years, and I realize how challenging caregiving can be at times. Please do
find some ways to take care of yourself as well. Too often, people ask about
the patient but fail to ask how the caregiver is doing emotionally and
physically. We are here to support you and to check in to see how you are
doing. If you are seeking assistance, please email us at contactus@bronchandntm.org or call
(833) 411-5864.

5 days ago

360Coach Brandon

360Coach Brandon

๐ŸŒฟ Good Morning & Happy Sunday

Good morning, Bronch and NTM 360social ๐Ÿ’™
For many areas, today may bring snowโ€”or even blizzard conditions. If thatโ€™s you, this is a gentle reminder that itโ€™s okay to slow things down and stay safe.

Changing plans to protect your breathing, your energy, and your well-being is not something to feel guilty aboutโ€”itโ€™s taking care of yourself.

Whether today means staying warm inside, adjusting plans, or simply taking things one breath at a time, that choice matters.

โœจ Whatโ€™s one small thing youโ€™re doing today to take care of yourself?

5 days ago

Ksmiles123

Ksmiles123Happy National Caregivers Day! Today we celebrate individuals who dedicate their time to care for others, both in a personal and professional capacity.

To all the caregivers in our community: thank you for your tireless dedication to improving the lives of others! Your care makes a real and lasting impact.

6 days ago

360Coach Brandon

360Coach Brandon

Katie has a great topic to share about Reflux:

Living with bronchiectasis or NTM often comes with more than just lung symptoms. Reflux is something many people also deal with โ€” even when itโ€™s not obvious.

When stomach acid travels upward into the esophagus or throat, it can lead to heartburn, throat irritation, muscle tightness, and extra mucus. Some people never feel classic heartburn at all โ€” this is often called โ€œsilent reflux.โ€ If you notice frequent throat clearing, ongoing mucus, or a sore throat that just wonโ€™t quit, reflux could be playing a role.

The good news is that small, everyday habits can make a big difference. Here are a few lung-friendly reflux tips that may help:

Eat smaller meals more often and avoid overeating

Choose non-spicy foods

Chew slowly and thoroughly

Focus on lean proteins like chicken, turkey, and fish

Choose whole grains and fiber-rich foods to help absorb stomach contents

Enjoy non-citrus fruits

Opt for low-fat soups and dairy

Choose decaffeinated beverages and avoid peppermint or menthol products

Managing reflux isnโ€™t just about comfort โ€” itโ€™s also about protecting your airways and supporting your lungs.

Do you struggle with reflux? What strategies have helped you the most?
Letโ€™s share and support one another ๐Ÿ’™

1 week ago

  • NewestOldestClick to View All Comments8 comment(s)
  • Pam in ColoradoGI specialist at National Jewish in Denver prescribed either omniprozole or famotidine (generic for Pepcid AC). I take famotidine. After a year I have discovered, through much trial and error, that 10 mg rather than 20 mg of famotidine, taken around 10 am, will relieve acid reflux most all day when being conscious of not overfilling the stomach, especially in the evenings, as well as  eating smaller meals, with the main meal being taken at the latest at 12 noon.
    Katie, I will try Reflux Gourmet.1 week ago
  • Ksmiles123Pam, 
    Hello! You are most welcome. I am glad that Pepcid 10 mg works for you. I could not tolerate the higher dose either.  I hope that you like Reflux Gourmet.1 week ago
  • Ksmiles123Pam,
    Please discuss adding any supplements with your gastroenterologist. Supplements have side effects/ interactions for some people. 5 days ago
Ksmiles123

Ksmiles123February is Black History Month- we celebrate great leaders like Mary Eliza Mahoney.  In 1879, Mary became the first Black licensed professional nurse in the United States โ€” at a time when most nursing schools excluded Black students.

Her success challenged racist barriers in professional education and helped legitimize Black nurses in a segregated healthcare system.

She also co-founded the National Association of Colored Graduate Nurses โ€” advocating for equity in nursing education and practice.

Access to nursing didnโ€™t expand naturally. It expanded because leaders like Mahoney refused exclusion.

1 week ago

Seated

Seated

Hello group. Duly diagnosed after 6 month difficult differential decision making. I qualify for both these diagnoses. I am now in a three month period until my next CT scan and physician appointment. Learning about how little Medicine has to offer as far as patient support and prediction of disease progression. It would seem current education that it's up to me to maintain airway clearance at home with six month CT scans to see if I have Cherry Tree or hand and glove scans. Does that sound like anyone else's idea of future life? Some literature seems to say that I have excellent chance of living another five years, i'm currently 78 year old white male, with hx in 2016 of MRSA pneumonia.  (plan to phone patient ambassador line in future)



1 week ago

  • NewestOldest
  • Ksmiles123Seated,
    Yes, it is so frustrating to be a patient with a rare disorder and receive very little or no education on BNTM from your healthcare provider. We must do research on our own, advocate, and empower ourselves through knowledge of these diseases.  Airway clearance is of utmost importance. There is plenty of information under the Learn More section in the menu on the upper right side. Do not believe the literature you read about 5 years; many of us have been around a very long time with this disease. I read that I had 12 years when I was newly diagnosed, and that was 23 years ago- I have no intention of going anywhere soon.  Please do call into the BNTM patient ambassador phone number when you are up to it. :)
    1 week ago
  • das23Hi Seated........I'll echo Katie..Don't listen to the 5 years!!!  I have moderate COPD and mild Bronchiectasis.  I'm 74--I don't plan on leaving here anytime soon!!  Learn all you can!  Make that call๐Ÿ‘1 week ago
360Coach Brandon

360Coach Brandon Newly diagnosed with Bronchiectasis or NTM? Youโ€™re not alone. ๐Ÿ’™

A new diagnosis can bring a lot of emotions and questions, and itโ€™s okay to take things one step at a time. Bronch & NTM 360social has dedicated spaces created especially for people who are just beginning this journey.

Within the community, youโ€™ll find sections and discussions focused on:

Understanding your diagnosis โ€“ clear, patient-friendly information

Living your best with Bronchiectasis and NTM โ€“ everyday tips for routines, airway clearance, pacing, and self-care

Shared experiences โ€“ learning from others who truly understand

Encouragement and connection โ€“ support when you need it most

In addition to community support, we offer one-on-one help through our Bronchiectasis & NTM 360 Patient Ambassadors. Our Patient Ambassadors are real patients who understand what youโ€™re going through and are available to listen, share resources, and help you find your footing. You can call toll-free (833) 411-5864, or you can email contactus@bronchandntm.org.

Whether youโ€™re here to read quietly, ask your first question, or connect directly with someone whoโ€™s been in your shoes, youโ€™re welcome here. Move at your own pace -- thereโ€™s no right or wrong way to begin.

โœจ Weโ€™re really glad you found us, and weโ€™re here to walk alongside you as you learn how to live your best with Bronchiectasis and NTM.

Here is a section that may be a good place to start:
https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Newly-Diagnosed

Newly Diagnosed | Bronchiectasis and NTM Association

Receiving a diagnosis like bronchiectasis and/or nontuberculous mycobacterial (NTM) lung disease can seem overwhelming. Feelings of sadness, fear, anxiety and/or confusion are perfectly normal. Here we hope to provide newly diagnosed patients with the education and tools needed to navigate those …

1 week ago

Lucinda

Lucindavoted on The Effects of Ultra-processed Foods Causing Hidden Hunger

Gave a thumbs up for a blog post!

1 week ago

Ksmiles123

Ksmiles123

Hello! Inflammatory markers
were discussed at our last BNTM Coffee Break. Below is a review of the two most
commonly used inflammation markers: the Erythrocyte Sedimentation Rate
(ESR) test, which measures the rate at which red blood cells settle at the
bottom of a test tube over a specified period. This rate increases with
inflammation. ESR values typically range from 0-22 mm/hr for men and 0-29 mm/hr
for women. Elevated ESR levels can indicate inflammation due to infections,
autoimmune diseases, and chronic inflammatory diseases.

CRP (C-reactive protein) is a
blood test that measures the level of C-reactive protein, which the liver
produces in response to inflammation. Normal CRP levels are generally less than
10 mg/L. High CRP levels indicate inflammation and can be associated with
infections, chronic inflammatory diseases, and other health conditions.
Elevated CRP levels require further diagnostic testing to determine the root
cause. It is a good practice to keep a paper copy of your labs or to view them on your patient portal to see trends over time. Please let us know if you
have any questions.

1 week ago

Ksmiles123

Ksmiles123Happy Chinese New Year to those who celebrate ๐ŸŽ‰ this holiday. 2026 will be the Year of the Horse, specifically the Fire Horse, symbolizing "energy, freedom, and forward momentumโ€. The horse is also synonymous with strength, grace and determination, and this zodiac sign serves as a powerful symbol of perseverance, freedom and momentum for the upcoming lunar cycle.The horse is traditionally regarded as an emblem of confidence and forward motion, suggesting a period defined by significant opportunity and success. I love the idea of โ€œ forward motion โ€œ for all of our members. Today is a new day to march forward for all BNTM members , using preventative measures and self care to work towards the best quality of life for each member.

1 week ago

  • NewestOldest
  • 360Coach Brandon Happy Chinese New Year! ๐Ÿงง๐ŸŽ
    Wishing our Bronch and NTM community a joyful Year of the Horseโ€”full of fresh energy, steady strides, and good vibes along the way. We hope youโ€™re able to enjoy a wonderful celebration filled with laughter, great food, and meaningful moments. ๐ŸŽ‰โœจ

    Hereโ€™s to a bright, healthy year ahead. ๐Ÿ’™1 week ago
  • Ksmiles123Great food, some laughter and meaningful moments are a part of the healing recipe. Enjoy your day! 1 week ago
Ksmiles123

Ksmiles123Presidents Day, officially Washington s Birthday, is a holiday in the United States celebrated on the third Monday of February to honor all persons who served in the office of president of the United States. The federal holiday specifically honors George Washington, who led the Continental Army to victory in the American Revolutionary War.

1 week ago

Ksmiles123

Ksmiles123Hello! Are you able to get some exercise in throughout the winter months? Exercise is good for our hearts, ๐Ÿ’•, lungs and our emotional wellbeing. Five to ten minutes a day, is far better than no exercise. It is recommended to start out slowly and to gradually increase your exercise plans over time. The link below reviews the benefits of exercise. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exercise
Please share your exercise routine with other BTM members. We are here to encourage one another to improve the quality of our lives.๐Ÿ˜๐Ÿ˜๐Ÿ˜

1 week ago

  • NewestOldest
  • das23I'm in a gym or out hiking almost everyday. In the gym I use the weight machines and treadmills etc. Luckily for me I've always exercised so when I was diagnosed with moderate COPD and later mild Bronchiectasis I just continued. I believe exercise has saved me. If you are new to exercise just start out slow. Do as much as you can--any exercise is good. We need to move if we can. Pulmonary Rehab is a great way to get started. Soooo---get movin' if you can--it Works!!!!!1 week ago
  • Ksmiles123Das23, 
    I wholeheartedly agree with you.
    โ€œ Get movingโ€ are the key ๐Ÿ”‘ words to improving the quality of life for individuals with lung issues. It is fine to take a day off when not feeling up to par, but pushing through on the following day is the best medicine of all. 1 week ago
Helenโ€™sHelper

Helenโ€™sHelper

๐Ÿ™€ Helen just joined up here and I am very excited. I am her caregiver. She is working on learning the harmonica. Itโ€™s hard for her, but itโ€™s great that sheโ€™s doing it.

1 week ago

  • Ksmiles123Welcome Helenโ€™s Helper! :? :)
    We are so glad you found the site. Any attempt is better than no attempt at all- we can only do our own personal best.
    We are here for the both of you if you have any specific questions. Please tge review the menu in the upper right corner for valuable educational information.:) 1 week ago
HelenKingAZ

HelenKingAZ

๐Ÿ˜ Beginning to learn the harmonica in between coughing

1 week ago

Ksmiles123

Ksmiles123Hello! Good nutrition is a part of self care. Taking time to prepare nutritious meals is a gift ๐ŸŽ to yourself that will pay off in the long run. Below is a link that reviews the basics of nutrition: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Nutrition

Nutrition | Bronchiectasis and NTM Association

Good nutrition is an important part of wellness in patients with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease. People who have bronchiectasis and NTM lung disease may use a lot of energy to breathe.

1 week ago

Ksmiles123

Ksmiles123

Hello! Happy Valentineโ€™s Day, Galentineโ€™s Day or whatever you call this day of celebrating our hearts ๐Ÿ’•โ™ฅ. I hope that you enjoy this day whether you are married, single, divorced, widowed, in limbo. Feeling supported is associated with shifts in immune regulation, including inflammatory pathways linked to long-term chronic disease risk.

Connection is a basic human need and an important nutrient similar to meds and food. . We are here to support you here on line , via the phone 833-411-5864, or via email at contactus@bronchandntm.org. I hope that you have a good day getting pampered by someone or pampering yourself- you have been dealing with health challenges and you deserve it. 
๐Ÿ’•โ™ฅโค๐Ÿ’๐ŸŽŠ๐ŸŽ๐Ÿค—

1 week ago

Ksmiles123

Ksmiles123

Hello! Albumin and Prealbumin were discussed during our
recent BNTM Coffee Break.

Total protein has two main componentsโ€”albumin and globulin.
The bodyโ€™s protein is derived from ingested food and is influenced by the
quality of diet, as well as by liver and kidney function.

Below is a basic review of Albumin vs. Prealbumin. Think of
them as nutrition markers with different time speeds.๐Ÿฅฃ
Albumin =โ€œLong-term fuel tankโ€. Albumin reflects overall nutrition over
weeks to months. Low albumin can mean: poor nutrition over time, chronic illness/inflammation.
Low albumin is linked with weaker breathing muscles and slower recovery. Prealbumin
= โ€œWeekly check-inโ€. Prealbumin reflects recent protein intake -the last few
days to a week.

This marker is helpful to see if nutrition support is
working, if protein intake is improving, and if recovery is moving in the right
direction. It also drops with infection, inflammation, stress, and steroid use.
This matters for BNTM patients since breathing takes muscle strength.
Malnutrition can lead to a weaker diaphragm, greater fatigue, slower healing, and a higher risk of infection. This is an important lab to check before a patient has
surgery.

This explains why good nutrition is so important for us. We
may be tired on some days of preparing meals, but having quick, easy meals available is essential to a better quality of life.







2 weeks ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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