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ChristinaH

ChristinaHTogether we could create a brighter future for people living with bronchiectasis

We’re looking for adults to join The AIRTIVITY® Study to see if an investigational medicine - designed to target the harmful inflammation that contributes to bronchiectasis – can help improve the lives of people living with the condition. Join the movement – to find out how to take part, please contact the study team, visit theairtivitystudy.com


https://airtivity.researchstudytrial.com/?cookie_consent=yes&utm_source=patient_advocacy_group&utm_medium=Bronch_NTM_newsletter&utm_campaign=patient_recruitment&r=16

3 hours ago

360Coach Brandon

360Coach Brandon Hello everyone! 

Our next BronchandNTM360social Coffee Break is Wednesday, March 11, 2026 @ 2:30pm EST.

This month we’ll be joined by Divya Reddy MBBS, MPH to discuss exacerbations and the role DPP1 inhibitors (such as Brinsupri) have in minimizing exacerbations. Dr. Reddy is the Associate Professor of Medicine / Fellowship Director, Pulmonary and Critical Care Medicine Director, Bronchiectasis and Nontuberculous Mycobacterial (NTM) Disease Program at Montefiore Einstein.

Resources:
https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

We will open the call fifteen minutes early, so please join us if you wish to speak casually with us or other community members. Any health-related discussion will be held until the start of the meeting.

The meeting registration link is here: 
https://us06web.zoom.us/meeting/register/tZclcuusrDMpG9PrF3BDUA2nw2csTkQsg7EG#/registration 

Looking forward to seeing you soon!

Exacerbations | Bronchiectasis and NTM Association

People with bronchiectasis and NTM lung disease sometimes struggle with staying well. Inflammation coupled with mucus pooling in the lungs becomes a breeding ground for bacteria. If you are unable to clear the mucus from your airway, you may have a greater chance of having an exacerbation (x-saa …

5 days ago

Ksmiles123

Ksmiles123Hello! What are some benefits of pulmonary rehab?
-Increased energy
-Decreased breathlessness
-Improved well-being
-&  more.  Pulmonary rehabilitation—a powerful, often underused therapy that can benefit people with chronic lung diseases. 

1 hour ago

360Coach Brandon

360Coach Brandon Together we could create a brighter future for people living with bronchiectasis

We’re looking for adults to join The AIRTIVITY® Study to see if an investigational medicine - designed to target the harmful inflammation that contributes to bronchiectasis – can help improve the lives of people living with the condition.

Join the movement – to find out how to take part, please contact the study team, visit www.theairtivitystudy.com

9 hours ago

  • NewestOldest
  • 360Coach Brandon Studies like this play an important role in helping us better understand bronchiectasis and develop new treatments. If this is something that interests you, it might be worth checking out the information and seeing if it could be a fit.9 hours ago
  • Ksmiles123Participation in this type of research studies is so valuable for the development of new drugs. I hope that you will consider checking out the site. 9 hours ago
  • 360Coach Brandon Join the movement – to find out how to take part, please contact the study team, click below to visit www.theairtivitystudy.com 
    9 hours ago
Alyssa Dittner

Alyssa Dittneranswered the question HRT

This is a great conversation. I think we will be hearing more about hormone therapy in the future. Good for you for doing your research and making your own informed decision. I listen to a lot of podcasts so I can do the same.
Ksmiles123KateB2025 also answered the question Ksmiles123and 1 other also answered the question

10 hours ago

Lubna

LubnaHi! Good day everyone. 
I am attaching an article. Can anyone clarify it for me that manuka honey is inhibiting the growth of pseudomonas auriginosa? Does this article mean this? https://pmc.ncbi.nlm.nih.gov/articles/PMC4023514/

Manuka honey treatment of biofilms of Pseudomonas aeruginosa results in the emergence of isolates with increased honey resistance

Medical grade manuka honeys are well known to be efficacious against Pseudomonas aeruginosa being bactericidal and inhibiting the development of biofilms; moreover manuka honey effectively kills P. aeruginosa embedded within an established biofilm. ...

20 hours ago

  • Ksmiles123
    Lubna,Hello! It would be wonderful if Manuka Honey could heal us.Isolates recovered from biofilm showed sustained, increased resistance to manuka honey treatment when cultured as a biofilm over time.  It reads that honey can assist other antimicrobials but can become resistant , as many antibiotics can become resistant as well. More research needs to be conducted on natural products , such as honey that can assist us in fighting these infections. Presently, there are no guidelines for supplemental treatment. 13 hours ago
Ksmiles123

Ksmiles123answered the question Not accepted into Bronchiectasis Clinic

Kath, What reason did they say that you were not accepted? You have the diagnosis. I would call and speak with the office manager to inquire about the situation. Please keep us posted.

1 day ago

Kalli Mago

Kalli MagoMarch 9-13 is Pulmonary Rehab Week! Pulmonary rehabilitation is a powerful, often underused therapy that can benefit people with chronic lung conditions. 

In 36 sessions taking place over 12-18 weeks, pulmonary rehab programs offer support, education, exercise, and more. Benefits include increased energy, decreased breathlessness, and improved well-being overall. 

Is pulmonary rehab right for you? This program particularly benefits individuals whose symptoms include shortness of breath, who feel their prescribed medication isn’t helping enough, and who are limited in their daily activities as a result. 

Want to learn more? Check out “The Power of Pulmonary Rehab,” a special two-part podcast series from the Bronchiectasis and NTM Association and the COPD Foundation. 
Episode 1: copdf.co/PRpodcast1 
Episode 2: copdf.co/PRpodcast2

1 day ago

Ksmiles123

Ksmiles123Hello! Will you be able to join us for the monthly BNTM Coffee Break tomorrow at 2:30pm, EST? The topic is exacerbations and DDP1 injuries, ( Brinsupri.). Below is the link to review content on exacerbations. this Please scroll down below , a few segments if you need to register. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

Exacerbations | Bronchiectasis and NTM Association

People with bronchiectasis and NTM lung disease sometimes struggle with staying well. Inflammation coupled with mucus pooling in the lungs becomes a breeding ground for bacteria. If you are unable to clear the mucus from your airway, you may have a greater chance of having an exacerbation (x-saa …

1 day ago

Emex56

Emex56

Thank you everyone. Happy to be here. 

1 day ago

Ksmiles123

Ksmiles123answered the question Feeling overwhelmed with new diagnosis

Lyn, Hello! Yes, it can be overwhelming dealing with this new diagnosis, to say the least. I am glad that you have reviewed materials and have sought out assistance with airway clearance. In addition to the community support you receive here on …

2 days ago

Ksmiles123

Ksmiles123answered the question Brinsupri Results

Carol, Hello! Welcome to the community.It takes six weeks or longer for most people to experience results. I have not taken it. I am glad you are not facing any side effects at this point in time. It is good to be mindful of potential side effects- and …
Countryviolet also answered the question Countryviolet also answered the question

2 days ago

Lyn175

Lyn175asked the question: Feeling overwhelmed with new diagnosis

I have recently been diagnosed with mild bronchiectasis. I am reading what i can online about it, but there is just so much to take in.. When i'm well i don't have much of a cough, and then when i do cough its very dry, and difficult to bring anything up …

2 days ago

Ksmiles123

Ksmiles123Hello! Are you ready to listen to a great podcast on the benefits, Power of Pulmonary Rehab? https://m.youtube.com/watch?v=ugUGi5cf4ao

2 days ago

Ksmiles123

Ksmiles123answered the question Coughing while traveling

Information on exacerbations. I hope that you can get in to see your Pulmonologist before June. We are here to assist you on your journey. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Exacerbations

2 days ago

360Coach Brandon

360Coach Brandon

🌸 March is Women’s History Month 🌸

This month we celebrate the incredible women who have shaped our world--through science, caregiving, advocacy, and everyday resilience. Their strength has opened doors, advanced medicine, and inspired generations.

In the lung health community, women play a powerful role. Many are patients navigating COPD, bronchiectasis, and other lung conditions with determination and courage. Many are caregivers supporting loved ones through difficult days. Others are researchers, respiratory therapists, nurses, doctors, and advocates working to improve treatments and quality of life.

Women have helped move lung health forward in meaningful ways--raising awareness, supporting research, and building communities where no one has to face a diagnosis alone.

💙 This month, we’d love to hear from you:

• Is there a woman who has inspired you on your health journey?
• Maybe a caregiver, doctor, friend, family member, or fellow community member?
• Or perhaps you’re celebrating your own strength in living with lung disease.

Take a moment to recognize the women who make a difference every day. Their stories matter, and sharing them can inspire someone else who may need a little encouragement today.

💬 Feel free to drop a comment and celebrate the amazing women in your life!

2 days ago

  • NewestOldestClick to View All Comments5 comment(s)
  • das23I'll echo Brandon---Thank you Katie...You have been a big help to me and everyone here. You are the Bus Driver here----Please keep driving!!!!😀✌👍2 days ago
  • Ksmiles123Das23, Thank you very much for your kind and positive words. I will continue to drive the bus, lol. I could tell you stories about riding the bus in the future. We used to call ambulances , “ the bus” when I was working in nyc as a young nurse. Thank you for being a regular participant/ member on this site. 2 days ago
  • das23👍1 day ago
Kath

Kathasked the question: Coughing while traveling

Hello, I was recently diagnosed with bronchiectasis and potentially NTM (awaiting sputum sample results). We currently have a trip planned for out of the country (Spain and Greece) for mid-May. Right now I am coughing a great deal, despite religiously …

2 days ago

Kath

Kathasked the question: Not accepted into Bronchiectasis Clinic

Hello, I was recently diagnosed with bronchiectasis and potentially NTM (awaiting sputum sample results). Based on everything I read, I requested a referral to the UNC Bronchiectasis & NTM Clinic, in order to take advantage of the expertise and …

2 days ago

KateB2025

KateB2025

Ksmiles ... wanted to share that I recently became a support group leader for KS-NE for NTMir. I admire all that you do and share here. You've been helpful especially when I was first diagnosed last June. Thank you! 

2 days ago

  • Ksmiles123Kate,
    Hello! Thank you for your words- you made my day much brighter. Helping one another helps ourselves as well. I am so glad that you have become a support group leader. Being a part of the NTMir NYC support group was so beneficial for me in my early days of my diagnosis. Please reach out anytime if I can provide you with any specific resources for your support group. Have a great week ahead! Katie 😍2 days ago
KateB2025

KateB2025

Hello. Trying to see if there is any information or studies on post menopausal women taking BHRT and increased risk of getting an NTM?  Currently have BE only. Started taking BHRT recently due to osteoporosis diagnosis. I haven't found be try much I do or studies - only one Korean study in pubmed 

3 days ago

Ksmiles123

Ksmiles123Hello! Today is the beginning of Pulmonary Rehab Week. Pulmonary Rehab assists an individual with treatment plans, reviews airway clearance, nutrition, coping skills.
Below is information on the basics of Pulmonary Rehab: https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Pulmonary-Rehab
Let us know if you have been through a pulmonary rehab program, and  have a good experience to share with the community . 

3 days ago

Grandma K

Grandma K

I am doing well today.  I am happy to discover this support group!  I was diagnosed with Bronchiectasis just over 2 years ago.  I was relieved to not have NTM, just an easily treatable pneumonia throughout my lungs.  Over the last year I have had Bronchiectasis exacerbations after a routine cold.  Antibiotics sent me back to a minimal sputum baseline.  Now I am using a nebulizer with inhaled saline 1-2 x most days.  I did not see that recommended on this feed and the post about respiratory measures to take to prevent Bronchiectasis exacerbations.  I am wondering why not…   Btw, 1 pulmonologist prescribed the nebulizer/inhaled saline and another said it would not be helpful…?!

5 days ago

  • NewestOldest
  • das23Welcome Grandma K......Many of us practice Airway Clearance using nebulized saline. Check out the tabs above--LEARN MORE etc. Helpful info there4 days ago
  • Ksmiles123Grandma K,
    Hello! Welcome to the community. Many individuals do use normal saline nebulizers to loosen their mucus. Research is currently being done on this topic; some pulmonologist strongly believe in it and recommend it for their patients. Other doctors are awaiting more results from research. Below is a link on medications used to loosen sputum, and normal saline is listed. Please let us know if you have any other questions. 4 days ago
Suepink1

Suepink1asked the question: HRT

I'm sure I heard on a webinar something about HRT and NTM/BE. Does anyone know of any studies into the effect of HRT on post menopausal women who get NTM? I'm wondering if it might help prevent NTM in the first place, but then once you've got it, or had …

5 days ago

Ksmiles123

Ksmiles123asked the question: Hello! Do you use medications while doing your airway clearance?

Mucolytics are medications that thin or break up the sputum in your lungs, making it easier to cough up and out. These medications assist one to clear out the mucus as much as possible. Below is a link to the different medications. Please let us know if …

5 days ago

Ksmiles123

Ksmiles123

Hello! Living with Bronchiectasis or NTM can sometimes
make it feel like your lungs are in charge- every time you do your airway
clearance, you take that control back. Airway clearance isn’t just a treatment
— it is an act of self-care and strength. Each session helps clear mucus and
reduces the risk of infection.

Some days it’s easy. Some days it takes real
determination—both count. Every session matters✨ . Every effort counts. Every day
you show up for your health is a win.

You may not see the results immediately, but over time,
these small, consistent actions make a powerful difference for your lungs and
your quality of life—today’s reminder: You are not powerless in this disease. Your
Airway Clearance Is Your Power 💙. Your daily self-care
is your strength. 💪💙



6 days ago

Ksmiles123

Ksmiles123Hello! There are many different types of airway clearance devices. Which one do you use?It does take some patients time to figure out which device is most suitable and effective for them to use on an ongoing basis. Below is a link that reviews the different types of devices. Keep on doing your airway clearance- better days are on the horizon. https://www.bronchiectasisandntminitiative.org/Learn-More/I-am-a-Patient-or-Caregiver/Coping-with-Airway-Mucus/Airway-Cleara

Coping with Airway Mucus | Bronchiectasis and NTM Association

Individuals with bronchiectasis and nontuberculous mycobacterial (NTM) lung disease struggle to keep their airways clear of mucus. Bronchiectasis causes too much mucus, which collects in the lungs. It also creates expanded airways, which makes it harder to cough up the mucus. The cilia in the …

1 week ago

Ksmiles123

Ksmiles123answered the question Update on NAC

Please keep us updated on how you are doing with NAC. It seems to be recommended more in the UK and other countries than the USA.
Indywoman also answered the question Indywoman also answered the question

1 week ago

CodyJames

CodyJames

Hi I’m new here. I was born with COPD due to complications at birth. I’m 38 years old. I went 30 years without seeing a pulmonologist but this past Christmas I got pneumonia and it was suggested I go see one. A week ago I had a pulmonary function test and a ct scan that said I had severe bronchiectisis and a FEV1 of 20%. The first time meeting the pulmonologist he told me I would be on a ventilator in 4-5 years and referred me to a lung transplant facility. I was shocked. And now I’m terrified I’m gonna die in a couple years

1 week ago

Kalli Mago

Kalli MagoMarch is Sleep Apnea
Awareness Month! Studies suggest that more than 50% of people with
bronchiectasis also have obstructive sleep apnea (OSA).1 


Common symptoms of
sleep apnea include loud snoring, gasping for air in your sleep, difficulty
staying asleep, waking up with a dry mouth, having headaches in the morning,
and feeling sleepy throughout the day. If you share a bed with someone, they
might also witness sleep apnea symptoms, like breathing that stops and then
restarts as you sleep. 


For people with both
bronchiectasis and sleep apnea, the most common symptoms are snoring and
daytime sleepiness. However, some people with bronchiectasis have OSA without
recognizing any symptoms.1 If your doctor has not already started
the conversation, talk to them at your next appointment about whether you
should be evaluated for sleep apnea. 


Resources 
1. Borekci S, Hacoglu
Y, Musellim B. Investigation of obstructive sleep apnea in adult non-cystic
fibrosis bronchiectasis patients. Eur Resp J. 2019;54(63). doi:10.1183/13993003.congress-2019.PA631

1 week ago

Indywoman

Indywomanasked the question: Update on NAC

Have looked through the questions/answers on NAC. Saw this about 3 months ago. https://pmc.ncbi.nlm.nih.gov/articles/PMC12603500/ I have asthma/Bronchiectasis. People taking this were in threads a while ago. I don't want to take more supplements than I …

1 week ago

Medical Advice

It is not our intention to serve as a substitute for medical advice and any content posted should not be used for medical advice, diagnosis or treatment. While we encourage individuals to share their personal experiences with bronchiectasis and NTM, please consult a physician before making changes to your own disease management plan.

 
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